GPs play a pivotal role in diagnosing and managing patients with mitochondrial disease (mito), according to a Sydney neurologist, Dr Christina Liang from Royal North Shore Hospital, Sydney.
The Maybe it’s Mitochondrial Disease education program is aimed at increasing GP’s awareness and knowledge about mito.
The Mito Foundation believes there are thousands of patients in Australia, who are un- or misdiagnosed and do not have access to the specialist care they desperately need.
AUSTRALIAN DOCTOR MODULE FOR GPs
GPs are invited to complete a module through Australian Doctor, which attracts 2 Category 2 RACGP or 1 core point ACRRM points.
By piecing together the complex puzzle that is mito, you can help improve outcomes for people living with this devastating yet sadly underdiagnosed disease.
The module includes expert video commentary by Professor Carolyn Sue, Director of Neuorgenetics at Royal North Shore Hospital and Director of the Kolling Institute, University of Sydney.
RECOGNISING MITOCHONDRIAL DISEASE IN PRIMARY CARE
An Introduction to Mito -
Patient Information Factsheet
This factsheet outlines possible symptoms and information on management. It can be printed and provided to patients.
Australian Doctor – How to Treat Mitochondrial Disease
Targeted at General Practitioners and featured in the Australian Doctor publication, this in depth article covers the pathogenesis, clinical assessment and management of patients with mitochondrial disease. The article also includes case studies and a ‘How to Treat’ quiz to test your knowledge.
TELL YOUR COLLEAGUES ABOUT ‘MAYBE IT’S MITO’
Whether your colleagues know about mito or not, please encourage them to complete the education module. This flyer provides them with the information they need.
The Mito Foundation understands that finding health professionals who are familiar with mito can be a frustrating experience. To try to ease this stress, we have collated an ever growing list of GPs, health professionals, including neurologists, neurogeneticists, metabolic disease specialists, and allied health professionals who have experience in diagnosing, treating, and managing patients with mitochondrial disease. Please contact the Helpline to find out about health professionals in your area.
If you have a great GP who understands mito, please encourage them to join the Mito Professionals Directory and help more mito patients. Invite them to find out more by calling Rebecca Davis on 02 8033 4113 or by visiting:
The Mito Foundation provides a variety of support services for people with mito and those awaiting a diagnosis.
Thanks to the generosity of our supporters, the Mito Foundation is funding research with the aim of improving diagnosis, treatments and finding cures.
DONATIONS AT WORK
The Maybe it’s Mito education program was funded thanks to the generous support of the Mito Foundation’s donors. It will have a direct impact on thousands of Australians affected by mito.
** Red flag symptoms can include diabetes, seizures and ‘salt and pepper’ retinopathy. Find out more in our Infographic. Print and take the infographic to your GP to assist in discussion.
The Maybe it’s Mito content has been produced by Saatchi & Saatchi Wellness in partnership with Australian Doctor Group, with an independent educational grant from the Mito Foundation.