International Mito Patient Forums

The global mitochondrial disease (mito) scientific community is constantly involved in research in treatments, diagnostic methods, and better understandings of mito. Patient forums and symposiums provide fantastic opportunities for researchers and patients to come together to share the latest developments in mitochondrial medicine.

Hearing from experts can be an empowering, rewarding experience that can keep you at the forefront of developments in mito research.

The Mito Foundation hosts a Patient Forum as part of AussieMit, a biennial mito conference held every second November, as well as an annual symposium targeted to patients, clinicians, and researchers. The Mito Foundation also provides regular updates through Mito Information Days. Click here to learn more.

Patient Forums are also available to patients willing and able to travel overseas.

View a list of international patient forums below. If you are travelling, or would like to travel to one of the forums and would like to connect with other Australian mito community members who are attending, please email


Cologne, Germany

EUROMIT is a European mito conference for patients, medical professionals and researchers.

The conference will feature a patient meeting – a two-day event organised by leading scientists to share the latest scientific developments in the field of mito research with patients.

Topics include new therapies, current and future trials and developments, ‘ask the mito doctor’, and mitochondrial donation.

Speakers include Sir Doug Turnbull of the Wellcome Trust Centre for Mitochondrial Research (UK) who will present on mitochondrial replacement, and Professor Jan Smeitink of Khodrion (NL), who will present on mitochondrial disease drug developments.

The meeting will be held on 14 and 15 June. Registration closes 10 May.

Find out more.

Washington DC

The UMDF symposium is aimed at patients and families. Top mito specialists will give presentations, participate in ‘ask the mito doc’ panels, and have one-on-one discussions with mito patients.

The symposium is a fantastic opportunity for patients and families affected by mito to network with specialists, as well as other families.

The symposium will run across two days on June 30 and July 1 2017 at the Hilton Alexandria Mark Center, Alexandria, VA.

Click here for more information and to register.