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Mito News

This page contains news items from 2018 and 2017. For older new items, please visit the news archive.

Senate Committee Recommends Change in Laws


28 June 2018 The Report from the Senate Inquiry gives hope that families will be able to access mitochondrial donation and have children free of mito.

 


The Mito Foundation Partners with The Lily Foundation


27 June 2018 The Mito Foundation and The Lily Foundation have partnered to co-fund research into treatment for recessive RRM2B related mitochondrial disease.

 


The Mito Foundation Supports Exciting Research


21 June 2018 An the Mito Foundation Booster Grant will support an exciting research project applying ‘state of the art’ approaches to genomic testing.

 


Four Reasons to Join the Mito Registry

 

15 May 2018 Why you should join the Mito Registry, if you have been diagnosed with or are suspected to have mitochondrial disease (mito).

 


The Bloody Long Trek is Back!


10 May 2018 Trek the Great Wall of China to cure mitochondrial disease (mito) – register now! 

 


AussieMit 2018 Registrations Now Open


2 May 2018 Register now for Australia’s most important conference into mitochondrial research! 

 


The Mito Foundation Launches School Education Program

30 Article 2018 the Mito Foundation has launched Mito 4 Kids, a school education program about mitochondrial disease (mito) for children in years K-6.

 


New the Mito Foundation Funded Projects


26 April 2018 the Mito Foundation has approved funding for four new exciting projects into areas such as genetic testing, standards of care, whole genome sequencing and Sengers syndrome.

 


Participate in the First Mito Study of its Kind


18 April 2018 The Mito Foundation is working with the International Centre for Community-Driven Research to understand the experience of mito patients and what they want from future treatment, care and support.

 


Calling Participants for Research Studies


16 April 2018 Curtin University (WA), the University of Sydney (NSW) and the Sydney Children’s Hospital at Westmead (NSW) invite the mito community to participate in research studies.

 


The Mito Foundation Position Statement: Use of Genetic Information by Life Insurers in Australia


April 2018 Read the Mito Foundation’s position on the use of genetic information by life insurers in Australia, in light of the recent Parliamentary Inquiry into the life insurance industry (March 2018).


Changes to the Mito Foundation Board


28 February 2018 The Mito Foundation thanks Dave Cleary for representing WA on the Mito Foundation Board since 2014 and warmly welcomes new representative Fiona Elmer and alternate Dan Loden.

 


Update on Stealth BioTherapeutics Australian Trial


16 February 2018  Stealth BioTherapeutics’ interventional study on Primary Mitochondrial Myopathy (PMM) treatment will no longer take place in Australia.

 


Review of WA Laws Could Impact Mito Families


25 January 2018factsheet The WA Department of Health has invited the Mito Foundation to provide a submission into its independent review of the Western Australian Human Reproductive Technology Act 1991 (HRT Act).

 


The Mito Foundation Ambassador Selected for Ashes


Image of Pat CumminsThe Mito Foundation Ambassador Pat Cummins will represent Australia in the first test of the Ashes.

 

 


The Mito Foundation Awards 2017


27 September 2017 Award recipients have been announced for this year’s the Mito Foundation Awards.

 

 


Patient Standards of Care


factsheet16 August 2017 International standards of care have been established for patients with primary mitochondrial disease.

 

 


The Mito Foundation Biennial Services Survey Results


factsheet7 August 2017 The results from the 2017 the Mito Foundation Services Survey are now available.

 

 


Mito Warrior Mobile Game


4 August 2017 Mito Warrior is an outer space adventure game develop by Stealth BT to teach people about mitochondria and mitochondrial disease.

 

 


In Memory of Rose Lingard


In Memory of Rose LingardWith great sadness, the Mito Foundation learnt the news of the passing of Rose Lingard on Friday 9 June 2017.

 

 


How does the Federal Budget Impact the Mito Community?


factsheetRead the Mito Foundation’s position statement and summary of the Federal Budget, and how it will impact the mito community.

 

 


Funding Announced for ‘Big Bear Cottage’


factsheetOn 2 April NSW Premier Gladys Berejiklian and Minister for Health Brad Hazzard pledged two million dollars of funding to establish Big Bear Cottage – a hospice for 18 to 30 year olds.

 


AMDF-AGHA Genetic Testing Partnership


10 April 2017 The Mito Foundation is pleased to announce a new research opportunity for patients with suspected mitochondrial disease. The project aims to provide patients with a genetic diagnosis, and determine the most effective way to diagnose mito.

 


International Patient Forums


3 April 2017 A number of international patient forums are available to the Australian mito community in 2017.

 

 


The Mito Foundation Services Survey


factsheet27 February 2017 The Mito Foundation is seeking feedback via an online survey, from people with a personal connection to mito to enable us to improve and expand on our services. The survey will take approximately 20 minutes, and your responses can remain anonymous. Click here to take the survey.

 


Luca’s Second Birthday Celebration


Probono19 February 2017 On 19 February, The Essendon Royals Soccer Club hosted a party in celebration of Luca’s second birthday. Luca was diagnosed with mitochondrial disease when he was 10 months old.

 


The Mito Foundation Welcomes the ACNCS’s ‘Tick of Charity Registration’

 

3 January 2017 The Mito Foundation welcomes the introduction of the Australian Charities and Not-for-profits Commission (ACNC) ‘Tick of Charity Registration’.