Thank you for Staying in Bed

 

As the Stay in Bed Day Season draws to a close, a HUGE thank you to everyone who participated. For many it was their fourth,fifth or even sixth Stay in Bed Day, while others took part for the first time!

It’s easy to get carried away with the fun aspect of Stay in Bed Day, but there is a serious side…

Mya Abraham explained what the day means to her:

“My little angel was diagnosed with this horrible disease not long after he was born. He stayed strong Danielfor a little over a year and then his little body gave up. It was extremely difficult and painful to see him go through so much. Mito sufferers have a lack of energy and are held back from doing so many things that others do, like hold a toy, play, feed themselves or even being fed. Every day is a struggle. Resting is very important to them to recharge, and when they feel a bit better, it’s only a matter of time before they need to rest again. Stay in Bed Day is a wonderful thing to take part in and a great way to raise funds and help make awareness of this disease, to help those who are suffering with this battle with more treatment and medication, and to hopefully find a cure for them, and to prevent it from happening to others.”

Many school children around the country went to school in their pyjamas or wore mito green in exchange for a gold coin donation – a fun way to raise awareness and funds.

THANK YOU to those who shared their reason for supporting Stay in Bed Day – it’s inspiring to read your stories and understand what it means to you.

AidanJoanne’s story: “In the past, Stay in Bed Day was a special day when we remembered the daily struggle my cousin Aidan went through as he fought Pearsons Syndrome – a rare form of mito. This year we spent the day honouring his memory – Aidan swapped his superhero cape for his angel wings in July 2014 at five years old.  I will always keep fighting for a cure in his memory.”

Sharmane, pictured with her two children commented:

“I stay in bed as I have mito… I want to see a cure in my lifetime so that no one has to suffer this crappy illness. I do it to raise awareness, and show my children what it is like to support a cause and give your time to that cause”.Sharmane

THANK YOU also to the companies that supported Stay in Bed Day. Bedshed and Aura, helped to raise awareness of mito with their customers, What to Cook provided delicious energy-boosting recipes and StoryHead updated our promotional video.

Tom and Martine Vanderspuy shared their story on camera, and Upside Down Productions produced a touching video about the realities of mito – thank you.  You can watch the video here.

Stay in Bed Day’s aims to raise awareness of mito, and your support means more people now know about the disease. Thank you. The money raised will help find effective treatments and hopefully a cure.

Exciting news. Dr Kate Ahmad is conducting a new pilot clinical trial as part of the Mito Foundation Incubator Grant Programme.  This will be one of the first therapeutic clinical trials into mitochondrial research in Australia. Read more about it.

THANK YOU again for supporting Stay in Bed Day 2015!