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Upcoming Events

The Mito Foundation Upcoming Events

 

Upcoming Events

Select a month or scroll down to view upcoming events

September 2018 December 2018
October 2018
November 2018

View The Bloody Long Walk National Series events here

View ongoing events here

View our supporters’ events here


September

Mito Connect Skype Call *NEW*
15 September 2018

Mito Connect CallsThe Mito Foundation’s first Mito Connect Skype Call will be held on Saturday 15 September and the topic will be hearing loss. This call aims to better facilitate members of the mito community with hearing loss, however all members are welcome.

Date: Saturday 15 September
Time: 1.30pm – 2.30pm AEST
RSVP: To Sophie Newhouse at sophie.newhouse@mito.org.au or call the Mito Foundation on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join. Click here for more information.

What to expect on a Mito Connect Skype Call
The call leader will be visible on video, which will be useful for those who can lipread. You will then have the option of using video, instant messaging or both to participate. If you have not used Skype before and would like advice leading up to the call, please contact Sophie Newhouse at sophie.newhouse@mito.org.au or on (02) 8083 4113.

How to participate in a Mito Connect Skype Call

A Mito Foundation staff member will call you on Skype 10 minutes before and you will be connected to the group call. You will need to download the latest version of Skype onto your computer or smartphone, and provide your Skype contact email to Sophie Newhouse at sophie.newhouse@mito.org.au or on (02) 8083 4113 by 14 September 2018.


Global Mitochondrial Disease Awareness Week
16 – 22 September 2018

This week will  be acknowledged around the world with educational, fundraising and advocacy initiatives to raise awareness. The Mito Foundation is organising several events in Australia.

Visit the website for more information.


Stay in Bed Day
16 September 2018

Stay in Bed Day is a great excuse to do simply that… Stay in Bed… or at least in your pyjamas whilst raising funds and awareness of mito. It reflects the powerful fatigue that many patients experience. You can get involved by staying in bed all day or holding a pyjama day or breakfast club at the office or school and asking people to donate. Please visit the website for more information.

Email dominique.connerty@mito.org.au if you have any queries.


Sydney Symposium
18 September 2018

As a part of Global Mitochondrial Disease Awareness Week, we are holding a Sydney Symposium on Tuesday 18 September at Hotel CBD, Level Four, 52 King St, Sydney. It will be an opportunity for researchers, health care professionals, patients and their families to learn about the latest mitochondrial medicine research. Amongst the acclaimed speakers will be Professor Robert McFarland from the Wellcome Trust Centre for Mitochondrial Research in the UK.

Click here for the event program. Email rebecca.davis@mito.org.au if you have any queries.

NSW Parliament House Stall
19 September 2018

As a part of Global Mitochondrial Disease Awareness Week, we are hosting a stall outside Parliament House in Sydney to raise awareness among politicians and invite them to wear a green ribbon to show their support.

We will be joined by Chris Patterson, MP for Camden.

 


Melbourne Symposium
20 September 2018

As a part of Global Mitochondrial Disease Awareness Week, we are holding a Melbourne Symposium on Thursday 20 September at the Monash Conference Centre, 30 Collins St, Melbourne VIC 3000. It will be an opportunity for researchers, health care professionals, patients and their families to learn about the latest mitochondrial medicine research. Amongst the acclaimed speakers will be Professor Robert McFarland from the Wellcome Trust Centre for Mitochondrial Research in the UK.

Click here for the event program. Email rebecca.davis@mito.org.au if you have any queries.

Light Up for Mito
22 September 2018

Light Up for Mito is a global campaign taking place on 22 September this year. Landmarks around the world will be illuminated in green to raise awareness about mito as a part of Global Mitochondrial Disease Awareness Week.
You can support the initiative by asking local authorities in your area to organise for landmarks to be lit up in green. Download a template letter of request. Find out more.

October

The Bloody Long Trek – China
18-27 October 2018

The Mito Foundation and Inspired Adventures have teamed up to take an incredible group of people this once-in-a-lifetime opportunity to trek the Great Wall of China, visit historical sights and become immersed in the local culture, whilst raising vital funds to support Australians affected by mito. The adventure will take place from Thursday 18 October – Saturday 27 October. Find out more.

Over five inspiring days, they will follow remote and unrestored paths between otherwordly mountains, through local villages, across rolling farmlands and overlooking breathtaking scenery, as they navigate around some of the most majestic parts of the Great Wall. Atfter the trek, they will get to discover Bejiing’s confounding and contrasting culture.


Mito Connect Call
20 October 2018

Mito Connect CallsA Mito Connect Call will be held on Saturday 20 October. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

Date: Saturday 20 October
Time: 12.30pm – 1.30pm AEDT
RSVP: To Sophie Newhouse at sophie.newhouse@mito.org.au or call the Mito Foundation on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An the Mito Foundation staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The Mito Foundation staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


Brisbane Support Group
20 October 2018

Mito Connect CallsA Support Group meeting is being held on Saturday 20 October. The group will be led by mito community member, Tara Collyer. Attendees will meet in at the cafe in the lobby at 12.30pm for light refreshments and will proceed to room 4D at 1.15pm.

Date: Saturday 20 October
Venue: State Library of Queensland, Stanley Pl, South Brisbane QLD 4101
Time: 12.30 – 2.30pm
RSVP: To Sophie Newhouse at sophie.newhouse@mito.org.au or call the Mito Foundation on (02) 8033 4113

What are Support Groups?
Support Groups offer a casual meet up and a chance to connect with other individuals and families who understand the challenges that the mito community face. Support Groups generally meet every three to six months in a central location. Anyone who has a direct connection with mito is welcome to attend.

Click here for more information about Support Groups.


Newcastle Mito Information Day *NEW*
27 October 2018 

The Mito Foundation Mito Information Days

Join us for our brand new Mito Information Day in Newcastle.

Information Days offer the mitochondrial disease (mito) community the unique opportunity to hear from, and speak with, leading researchers and medical professionals working in the field. They also provide opportunities for community members to connect. Find out more here.

Date: Saturday 27 October
Time: 10am
Venue: John Hunter Hospital, John Hunter Campus, Lookout Rd, New Lambton Heights NSW 2305
RSVP: To Sophie Newhouse at sophie.newhouse@mito.org.au or call the Mito Foundation on (02) 8033 4113

Click here for the event program.

The Mito Foundation offers travel grants to assist people affected by mito to attend Mito Information Days. Find out more here.  Applications close Friday 31 August.


November

Mito Connect Call
22 November 2018

Mito Connect CallsA Mito Connect Call will be held on Thursday 22 November. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

Date: Thursday 22 November
Time: 1.30pm – 2.30pm AEDT
RSVP: To Sophie Newhouse at sophie.newhouse@mito.org.au or call the Mito Foundation on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An the Mito Foundation staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The Mito Foundation staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


Hobart Support Group
24 November 2018

Mito Connect CallsA Support Group meeting is being held on Saturday 24 November. Attendees will meet at 11.30am at Anglicare (50 Victoria Street, Hobart, TAS 7000).  Parking will be available on the street. Light refreshments will be provided.

The group will be led by community member, Shelley Beverley.

Date: Saturday 24 November
Venue: Anglicare, 50 Victoria Street, Hobart, TAS 7000
Time: 11.30am – 1.30pm
RSVP: To Sophie Newhouse at sophie.newhouse@mito.org.au or call the Mito Foundation on (02) 8033 4113

What are Support Groups?
Support Groups offer a casual meet up and a chance to connect with other individuals and families who understand the challenges that the mito community face. Support Groups generally meet every three to six months in a central location. Anyone who has a direct connection with mito is welcome to attend.

Click here for more information about Support Groups.


AussieMit
29 November – 1 December 2018

AussieMit 2018 will be the sixth biennial Australian conference for mitochondrial research. The conference brings together biochemists, geneticists, microbiologists, system biologists, clinicians and students to explore mitochondrial science and advancements in the latest diagnostic, treatment and preventative options for mito.

Date: Thursday 29 November – Saturday 1 December
Time: Various
Venue: Bio21 Institute, University of Melbourne, Parkville

Leading national and international researchers will give presentations alongside students and early-careeer researchers. Topics will include mitochondrial biology and mitochondrial dysfunction in disease and ageing. Click here to see confirmed speakers.

The main conference will also be accompanied by:

 

Visit the AussieMit website for more information and keep up to date by liking the AussieMit Facebook page.


December

Mito Connect Call
20 December 2018

Mito Connect CallsA Mito Connect Call will be held on Thursday 20 December. The call will give you the chance to connect with others affected by mitochondrial disease (mito). You can share your story, offer support and advice, or simply listen to what others have to say.

 

Date: Thursday 20 December
Time: 1.30pm – 2.30pm AEDT
RSVP: To Sophie Newhouse at sophie.newhouse@mito.org.au or call the Mito Foundation on (02) 8033 4113

What are Mito Connect Calls?
Mito Connect Calls provide a virtual space for members of the mito community to connect with each other. We hope they will go a little way to ease the isolation that many people experience, whether due to geographical location and/or health issues. The calls offer an opportunity to share your experience and receive advice and support from others who understand what it is like to live with mito. Anyone affected by mito is welcome and encouraged to join.

They are held monthly at a variety of times to help make them accessible for the community.

What to expect on a Mito Connect Call
An the Mito Foundation staff member will welcome you when you dial in. Once everyone has dialled in, you will have the opportunity to introduce yourself. The call is then open for participants to ask questions and share their experiences. The Mito Foundation staff member will remain on the call, however participants are encouraged to speak among themselves. If you would prefer to listen without speaking that’s okay too.

Click here for more information, and for tips on participating in the call.


The Bloody Long Walk National Series 2018

The Bloody Long Walk is a 35km challenge to cure mito. Participants will raise money to support mito patients and their families and fund the Mito Foundation’s research, advocacy and education efforts. Over the last five years, The Bloody Long Walk has raised $5 million and extensive awareness amongst the thousands of walkers and their supporters. to get involved, you can participate, sponsor a friend, volunteer or promote the event.

Brisbane (15 July) – Smashed it!

Townsville (29 July) – Smashed it!

Adelaide (19 August) – Smashed it!

Melbourne – (26 August) – Smashed it!

Sydney North (9 September) – Smashed it!

Perth (23 September) – Register Now!

Newcastle (7 October) – Register Now

Canberra (14 October) – Register Now

Sydney East (21 October) – Register Now!

Follow The Bloody Long Walk on FacebookTwitter and Instagram.


Ongoing

Albury Support Group

The Mito Foundation Support Groups

A support group in Albury has been set up for patients suffering with muscular degeneration. The sessions are designed to be flexible, informal catch-ups where patients can share experiences and offer emotional and practical support. There are also presentations by relevant guest speakers on occasion.

Meetings are held on the last Friday of the month at the Commercial Club Albury. For more information, please call Craig on 0401 473 340.


NDIS Upcoming Events

NDIS National Disability Insurance Scheme

The National Disability Insurance Scheme (NDIS) provides tailored individualised support to Australians with disabilities, as well as their families and carers.

The scheme aims to enable people to exercise more choice and control in their lives, through an individualised funding model that correlates with their ongoing disability support needs.

The National Disability Insurance Agency (NDIA) holds regular information sessions on the NDIS. Please check back here for regular updates on information sessions.

View a list of events.


Planning Your Own Event?

Are you planning an event in support of the Mito Foundation?  If so, please let us know by emailing info@mito.org.au