Mito Registry

The Australian Patient Care Standards are an important resource to guide health professionals to improve the care they provide for people impacted by mitchondrial disease (mito). The standards have been adapted for Australia based on the standards published by the Mitochondrial Medicine Society. Mito Foundation will work with mito specialists to raise awareness of the standards and use these as the basis to improve health care for the mito community.

Mito Foundation is pleased to share the submission we made to the Medicare Services Advisory Committee regarding the importance of Medicare funding for genomic testing to help diagnose mitochondrial disease (mito). Thank you to the generous mito community members who shared their stories and perspectives with us.

Mitochondria are the power houses of the cell providing the body with over 90% of the energy it needs to sustain life. In a person with mitochondrial disease (mito), the mitochondria do not work properly due to defects in genes controlling mitochondrial function. Impaired mitochondrial energy supply causes multiple organs to malfunction or fail.