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Helpline - 1300 977 180
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Helpline - 1300 977 180
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If you need more information or someone to talk to, you can call our Helpline on 1300 977 180, or email us at supportservices@mito.org.au.

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  • About Mito
        • About Mito – The following information will help you understand mito.
        • Understanding Mito – What is mitochondrial disease? Learn more about this rare disease.
        • Maybe it’s Mito – Information for individuals with suspected mitochondrial disease.
        • For Health Professionals – Information about mitochondrial disease for health professionals.
        • Genetics and Mito – Genetic changes can lead to conditions such as mito.
        • Mitochondrial Donation – An IVF technique with the potential to prevent mitochondrial disease in the next generation.
    • Managing Mito
        • Managing Mito – Resources to empower people to make informed choices and help navigate life with mito.
        • Resource Hub – A central hub of resources has been collated to help you understand and manage mito.
        • Find A Health Professional – Locate a health professional with experience in seeing people impacted by mito.
        • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
        • Personal Stories – Read inspirational stories of other people’s experiences with mito.
        • School Education and Support – These resources can help parents, carers and teachers support a child throughout their school journey.
    • Find Support
        • Find Support – Reach out to us today.
        • Helpline – Contact the Helpline to talk to a Support Officer for general advice or assistance.
        • Events – Connect with others who have similar experiences.
        • Support outside the NDIS – This page explains practical support options and services that may help in daily life.
        • NDIS Support – Access the NDIS Navigation Service for resources, education and 1:1 guidance on the NDIS.
        • Mental Health Support – Finding what support works for you can make a difference. Access resources to help you care for your mental health.
        • Peer Support – Unique one-on-one support for individualised connections within the mito community.
    • Get Involved
      • Support Our Research
      • Mighty Hearts
      • Donate
      • Give Monthly
      • Fundraise
      • Leave a Gift in Your Will
      • The Bloody Long Walk
      • World Mitochondrial Disease Week
      • Mito Community Voice
      • Opportunities
    • Research
        • Mito Foundation Research – Information on Mito Foundation’s research into mito.
        • Research and Medical Grants Program – Information on Mito Foundation’s funding opportunities.
        • Research Strategy – Information on Mito Foundation’s research strategy.
        • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies
        • Emerging therapies and clinical trials – Learn about therapies in development and opportunities to take part in research.New
        • Take part in clinical studies
    • Mito Registry
        • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
    • Events
      • All events
      • Mito Community Summit
    • About
        • Purpose and Vision – Learn about the foundation’s mission to enrich the lives of people impacted by mito.
        • Driving Change – Learn about the foundation’s advocacy and policy work.
        • Our Impact – Learn how your donations have helped people impacted by mito.
        • Our People – Learn more about the individuals involved with the foundation, from mito community representatives to public ambassadors.
          • Board of Directors
          • Team
          • Mito Community
          • Scientific and Medical Advisory Panel
          • Mito Community Advisory Panel
          • Patrons
          • Ambassadors & Supporters
        • Contact – Find out the various ways to get in touch with the foundation.
        • Affiliations – Learn about organisations that work with the foundation.
        • Annual Reviews and Audited Financial Reports – Access the annual review for a snapshot of the work done to provide support and hope to the mito community.
        • Opportunities – Find out about the latest opportunities to work or volunteer with the foundation.

    Archive for July 2025

    New report sharing outcomes of first babies born after mitochondrial donation provides hope for Australian families

    By Communications User | 17/07/2025
    Smiling woman holds baby. Man kisses the top of the child's head.
    Read More

    Why your voice matters: How mito advocates can shape access to future treatments

    By Communications User | 15/07/2025
    Pictured 2025 patient voice partners: Clare Stuart, Cara Philpott and Meagan Cross with Patient Voice Initiative CEO Ann Single and Kris at the Health Technology Assessment international conference 2025.
    Read More

    Mito Foundation and UMDF fund 7 global projects to advance mitochondrial disease research

    By Communications User | 01/07/2025
    A female researcher looks into a microscope.
    Read More

    Recent Posts

    • The Mito Foundation Awards 2026
    • NDIS reform Bill passes the Senate: what it means for the mito community
    • Mito Foundation and the Barth Syndrome Foundation announce partnership
    • Update on the mitoHOPE Program timeline
    • Four innovative research projects awarded Mito Foundation Incubator Grants

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