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Helpline - 1300 977 180
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Helpline - 1300 977 180
The Bloody Long Walk - Link to Bloody Long Walk website

If you need more information or someone to talk to, you can call our Helpline on 1300 977 180, or email us at supportservices@mito.org.au.

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  • About Mito
        • About Mito – The following information will help you understand mito.
        • Understanding Mito – What is mitochondrial disease? Learn more about this rare disease.
        • Maybe it’s Mito – Information for individuals with suspected mitochondrial disease.
        • For Health Professionals – Information about mitochondrial disease for health professionals.
        • Genetics and Mito – Genetic changes can lead to conditions such as mito.
        • Mitochondrial Donation – An IVF technique with the potential to prevent mitochondrial disease in the next generation.
    • Managing Mito
        • Managing Mito – Resources to empower people to make informed choices and help navigate life with mito.
        • Resource Hub – A central hub of resources has been collated to help you understand and manage mito.
        • Find A Health Professional – Locate a health professional with experience in seeing people impacted by mito.
        • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
        • Personal Stories – Read inspirational stories of other people’s experiences with mito.
        • School Education and Support – These resources can help parents, carers and teachers support a child throughout their school journey.
    • Find Support
        • Find Support – Reach out to us today.
        • Helpline – Contact the Helpline to talk to a Support Officer for general advice or assistance.
        • Events – Connect with others who have similar experiences.
        • Support outside the NDIS – This page explains practical support options and services that may help in daily life.
        • NDIS Support – Access the NDIS Navigation Service for resources, education and 1:1 guidance on the NDIS.
        • Mental Health Support – Finding what support works for you can make a difference. Access resources to help you care for your mental health.
        • Peer Support – Unique one-on-one support for individualised connections within the mito community.
    • Get Involved
      • Support Our Research
      • Mighty Hearts
      • Donate
      • Give Monthly
      • Fundraise
      • Leave a Gift in Your Will
      • The Bloody Long Walk
      • World Mitochondrial Disease Week
      • Mito Community Voice
      • Opportunities
    • Research
        • Mito Foundation Research – Information on Mito Foundation’s research into mito.
        • Research and Medical Grants Program – Information on Mito Foundation’s funding opportunities.
        • Research Strategy – Information on Mito Foundation’s research strategy.
        • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies
        • Emerging therapies and clinical trials – Learn about therapies in development and opportunities to take part in research.New
        • Take part in clinical studies
    • Mito Registry
        • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
    • Events
      • All events
      • Mito Community Summit
    • About
        • Purpose and Vision – Learn about the foundation’s mission to enrich the lives of people impacted by mito.
        • Driving Change – Learn about the foundation’s advocacy and policy work.
        • Our Impact – Learn how your donations have helped people impacted by mito.
        • Our People – Learn more about the individuals involved with the foundation, from mito community representatives to public ambassadors.
          • Board of Directors
          • Team
          • Mito Community
          • Scientific and Medical Advisory Panel
          • Mito Community Advisory Panel
          • Patrons
          • Ambassadors & Supporters
        • Contact – Find out the various ways to get in touch with the foundation.
        • Affiliations – Learn about organisations that work with the foundation.
        • Annual Reviews and Audited Financial Reports – Access the annual review for a snapshot of the work done to provide support and hope to the mito community.
        • Opportunities – Find out about the latest opportunities to work or volunteer with the foundation.

    Archive for June 2026

    NDIS changes: how we are speaking up for the mito community

    By Lauren Hood | 19/06/2026
    Woman viewing NDIS website on tablet device
    Read More

    Mito Foundation and UMDF reach US$1 million milestone for mitochondrial disease research funding

    By Lauren Hood | 17/06/2026
    A female researcher looks into a microscope.
    Read More

    Recent Posts

    • The Mito Foundation Awards 2026
    • NDIS reform Bill passes the Senate: what it means for the mito community
    • Mito Foundation and the Barth Syndrome Foundation announce partnership
    • Update on the mitoHOPE Program timeline
    • Four innovative research projects awarded Mito Foundation Incubator Grants

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