Managing mitochondrial disease (mito) alongside all of life's other responsibilities can be a lot for families. The following webpage is designed to ease this stress by providing useful resources and services to manage the everyday life of mito.

Key Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

 Attend a support event in your local area or online, including Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Helpful Resources

Link to Students Living with a Genetic Condition: A Guide for Parent Fact Sheet

Students Living with a Genetic Condition: A Guide for Parent

Fact Sheet

This how-to guide helps communicate your child’s support needs before they begin school.

Link to A Little Book About Mito Fact Sheet

A Little Book About Mito

Fact Sheet

A brightly illustrated book to help you guide your child through their mito diagnosis.

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

It’s important to eat well when you have mito to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.

Link to Fatigue in Mitochondrial Disease Video

Fatigue in Mitochondrial Disease

Video

Dr Christine Wools explores the different elements of fatigue, looking at how it is measured, different contributors and the treatments available.

Link to Mito 4 Kids: A School Education Program About Mito Webpage

Mito 4 Kids: A School Education Program About Mito

Webpage

Mito 4 Kids is a school education program for children in years K-6. The program is designed to help school aged children, their parents and teachers better understand the needs of children who are affected by mito.

Link to Supporting Your Child at School Fact Sheet

Supporting Your Child at School

Fact Sheet

This fact sheet provides tips to support your child’s school life. Everything from nutrition to communicating with your child’s school is included here.

Link to Genetics and Mito Fact Sheet Page

Genetics and Mito

Fact Sheet Page

All your physical features are controlled by your genes, which you inherited from your parents. Genetic changes can lead to diseases such as mitochondrial disease.

Link to Genetic Testing for Mitochondrial Disease Fact Sheet

Genetic Testing for Mitochondrial Disease

Fact Sheet

This fact sheet explains the purpose of genetic testing for mito. It details what is tested, the potential costings and the meaning of the test results.

Link to Sample Letter to Your Child's Teacher Webpage

Sample Letter to Your Child's Teacher

Webpage

This template letter removes the stress of knowing how to communicate your child’s condition with their school. Use it to help your child receive the support they need at school.