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Useful Webpages

Newly Diagnosed

A useful guide for your first steps towards living with mitochondrial disease.

For Adults Managing Mito

A guide to key services and resources for adults to manage mito

For Parents and Children Managing Mito

A guide to key services and resources for parents and/or children to manage mito

Key Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

Attend a support event in your local area or online, including Information Days, Mito Meet-ups and Mito Connect Calls.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Helpful Resources

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

It’s important to eat well when you have mito to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.

Link to Exercise and Mito Fact Sheet Page

Exercise and Mito

Fact Sheet Page

Regular exercise can help you in lots of ways if you have mito. Read some easy tips for safely getting started with an exercise program, setting goals.

Link to MindSpot Online Pain Course Webpage

MindSpot Online Pain Course

Webpage

This course is a free internet-delivered pain management program for adults aged 18 years and over.

Link to Genetic Diagnosis of Mitochondrial Disease Fact Sheet

Genetic Diagnosis of Mitochondrial Disease

Fact Sheet

This fact sheet outlines the benefits of obtaining a genetic diagnosis of mitochondrial disease. It includes relevant case studies and is a useful document to provide to your GP and specialists.

Link to Covid-19 Webinar Video

Covid-19 Webinar

Video

A webinar about Covid-19 as it relates to patients with Mitochondrial Disease. We answer some of the most common questions asked by members of our community.

Link to Mitochondria from Basic Biology to Mechanism of Mitochondria Video

Mitochondria from Basic Biology to Mechanism of Mitochondria

Video

At a 2020 Mito Information Day, Dr Diana Stojanovski breaks down the biology of mito to explain what happens when someone is diagnosed with the illness.

Link to The Mitochondrial Disease Report Fact Sheet

The Mitochondrial Disease Report

Fact Sheet

A detailed report produced by the Mito Foundation that includes multiple initiatives to improve mito care across government, health and community sectors.

Link to Medical Information Booklet for General Practitioners Fact Sheet

Medical Information Booklet for General Practitioners

Fact Sheet

This booklet provides medical professional with a comprehensive guide to mito to better understand the illness, diagnosis process and management of mito.

Link to Mitochondrial Disease Update: Testing and Treating Video

Mitochondrial Disease Update: Testing and Treating

Video

In this video, Dr Matthew Lynch (Senior Neurology Fellow) provides an update on the developments in mito treatment and testing.

Link to Genetic Testing for Mitochondrial Disease Fact Sheet

Genetic Testing for Mitochondrial Disease

Fact Sheet

This fact sheet explains the purpose of genetic testing for mito. It details what is tested, the potential costings and the meaning of the test results.