Beginning your journey with mitochondrial disease (mito) can be difficult, especially if you are unfamiliar with the disease. Here you will find links to events to increase your understanding of mito, and helpful videos and fact sheets to help manage your day-to-day life.

Key Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

 Attend a support event in your local area or online, including Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Helpful Resources

Link to First Steps With Mito Guide Fact Sheet

First Steps With Mito Guide

Fact Sheet

The diagnostic journey for those affected by mito often takes years and can be extremely distressing and isolating. This fact sheet aims to help you navigate information about mito and the health system.

Link to Understanding Your Diagnosis Fact Sheet

Understanding Your Diagnosis

Fact Sheet

Due to the varied nature of mito, diagnosing mito can be difficult. This fact sheet helps to demystify this by providing an explanation of the different types of diagnosis.

Link to Mito Foundation Patient Information Flyer Fact Sheet

Mito Foundation Patient Information Flyer

Fact Sheet

This flyer provides a snapshot of key points concerning mito. This format is easy to print and share with health professionals who are unfamiliar with mito.

Link to Genetics and Mito Fact Sheet Page

Genetics and Mito

Fact Sheet Page

All your physical features are controlled by your genes, which you inherited from your parents. Genetic changes can lead to diseases such as mitochondrial disease.

Link to Genetic Counselling for Mitochondrial Disease Fact Sheet

Genetic Counselling for Mitochondrial Disease

Fact Sheet

Genetic counselling provides you and your family with information about the nature, inheritance, and implications of genetic disorders to help you make informed medical and personal decisions.

Link to Considerations for Mito Patients Undergoing Surgery Fact Sheet

Considerations for Mito Patients Undergoing Surgery

Fact Sheet

This fact sheet explores what you need to consider if you are about to undergo surgery. Anaesthetic can cause complications so it’s best to consult a mitochondrial disease specialist.

Link to First Steps with Kids Fact Sheet

First Steps with Kids

Fact Sheet

This fact sheet can help to guide you in some of the first steps you may want to take after receiving a mito diagnosis for your child and aims to help you develop a plan for the future.

Link to Mindfulness to Manage Your Health and Life Changes Video

Mindfulness to Manage Your Health and Life Changes

Video
Carolyn Uhlmann (Psychologist), provides great tips to manage the health and wellbeing changes that come with mito through practical mindfulness techniques.
Link to Mitochondria from Basic Biology to Mechanism of Mitochondria Video

Mitochondria from Basic Biology to Mechanism of Mitochondria

Video

At a 2020 Mito Information Day, Dr Diana Stojanovski breaks down the biology of mito to explain what happens when someone is diagnosed with the illness.