Mitochondrial disease (mito) is a debilitating genetic disorder that robs the body's cells of energy, causing multiple organs to dysfunction or fail. It is highly complex and takes many forms.
The following information will help you understand mito and the support services and resources available to help you. It is not intended as a substitute for your medical practitioner’s advice.

Key Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

 Attend a support event in your local area or online, including Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Helpful Resources

Link to Exercise and Mito Fact Sheet Page

Exercise and Mito

Fact Sheet Page

Regular exercise can help you in lots of ways if you have mito. Read some easy tips for safely getting started with an exercise program, setting goals.

Link to Mitochondrial Disease Information Fact Sheet

Mitochondrial Disease Information

Fact Sheet

Within this fact sheet, you’ll find an explanation of mitochondrial disease including symptoms, who it affects, and the complications with diagnosis and treatment options.

Link to A Little Book About Mito Fact Sheet

A Little Book About Mito

Fact Sheet

A brightly illustrated book to help you guide your child through their mito diagnosis.

Link to First Steps With Mito Guide Fact Sheet

First Steps With Mito Guide

Fact Sheet

The diagnostic journey for those affected by mito often takes years and can be extremely distressing and isolating. This fact sheet aims to help you navigate information about mito and the health system.

Link to Students Living with a Genetic Condition: A Guide for Parent Fact Sheet

Students Living with a Genetic Condition: A Guide for Parent

Fact Sheet

This how-to guide helps communicate your child’s support needs before they begin school.

Link to Understanding Your Diagnosis Fact Sheet

Understanding Your Diagnosis

Fact Sheet

Due to the varied nature of mito, diagnosing mito can be difficult. This fact sheet helps to demystify this by providing an explanation of the different types of diagnosis.

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

It’s important to eat well when you have mito to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.

Link to Mito Foundation Patient Information Flyer Fact Sheet

Mito Foundation Patient Information Flyer

Fact Sheet

This flyer provides a snapshot of key points concerning mito. This format is easy to print and share with health professionals who are unfamiliar with mito.

Link to Fatigue in Mitochondrial Disease Video

Fatigue in Mitochondrial Disease

Video

Dr Christine Wools explores the different elements of fatigue, looking at how it is measured, different contributors and the treatments available.