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Helpline - 1300 977 180
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  • About Mito
      • Mito Information – What is mitochondrial disease? Learn more about this rare disease.
      • Maybe it’s Mito – Information for individuals with suspected mitochondrial disease.
      • Mitochondrial Donation – An IVF technique with the potential to prevent mitochondrial disease in the next generation.
      • Personal Stories – Read inspirational stories of other people’s experiences with mito.
      • Medical Information – Information about mitochondrial disease for medical professionals and researchers.
      • COVID-19 Information Portal – Information about COVID-19 vaccines, latest health advice and support resources.
      • Find A Health Professional – Locate a health professional with experience in seeing people impacted by mito.
      • Resource Hub – Helpful fact sheets, videos, expert presentations and third party resources.
      • Mito Community Voice – Understand the mito community’s role in shaping our work.
  • Managing Mito
      • For Newly Diagnosed – Information and services to help start your journey with mito.
      • For Medical Professionals – Information to help understand, treat and refer people impacted by mito.
      • For Adults – Services and resources to empower you in your day-to-day life with mito.
      • For Parents and Children – Services and resources to help manage your family’s day-to-day life with mito.
      • Find A Health Professional – Locate a health professional with experience in seeing people impacted by mito.
      • Resource Hub – Helpful fact sheets, videos, expert presentations and third party resources.
  • Find Support
      • Helpline – Contact the Helpline to talk to a Support Officer for general advice or assistance.
      • Patient Pathways Program – Our Patient Pathways Nurse will work with you to develop a tailor-made care plan.
      • NDIS Support – Access the NDIS Navigation Service for resources, education and 1:1 guidance on the NDIS.
      • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
      • Mito Information Days – An in-person event offering presentations from mito experts and connections with others impacted by mito.
      • Mito Connect Calls – A digital monthly call featuring guest speakers and topics of interest to people impacted by mito.
      • Mito Meet-ups – A regular state-based call for people impacted by mito to connect, provide support and combat isolation.
      • Peer Support – Unique one-on-one support for individualised connections within the mito community
      • Government Support – Learn about subsidies, concessions and disability services available to people impacted by mito.
      • Grief & Loss Support – Grief can be a response to many situations when living with a chronic illness, visit this page for support resources and organisations.
  • Get Involved
    • Mighty Hearts
    • Donate
    • Give Monthly
    • Fundraise
    • Leave a gift in your will
    • The Bloody Long Walk
    • Volunteer
    • Your Donations at Work
  • Research
    • Research Opportunities
    • Our Impact (Funded Grants)
    • Patient Studies and Clinical Trials
    • Leigh Syndrome International Consortium
  • Registry
    • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
  • Events
    • Mito Connect Calls
    • Information Days
    • Mito Meet-ups
    • Munch For Mito
    • World Mitochondrial Disease Week
  • About
      • Purpose and Vision – Learn about the foundation’s mission to enrich the lives of people impacted by mito.
      • Driving Change – Learn about the foundation’s advocacy and policy work.
      • Our Impact – Learn about research projects the foundation has funded.
      • Your Donations at Work – Learn how your donations have helped people impacted by mito.
      • Our People – Learn more about the individuals involved with the foundation, from mito community representatives to public ambassadors.
        • Board of Directors
        • Team
        • Mito Community
        • Scientific and Medical Advisory Panel
        • Mito Community Advisory Panel
        • Patrons
        • Ambassadors & Supporters
      • Contact – Find out the various ways to get in touch with the foundation.
      • Affiliations – Learn about organisations that work with the foundation.
      • Annual Review – Access the annual review for a snapshot of the work done to provide support and hope to the mito community.
      • Opportunities – Find out about the latest opportunities to work or volunteer with the foundation.

Affiliations

The Mito Foundation is excited to be working with the following organisations:

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Centre for Community-Driven Research Logo
CENTRE FOR COMMUNITY-DRIVEN RESEARCH
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FIA Organisational Member Logo
Genetic Alliance Australia Logo
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Human Genetics Society of Australia Logo
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Know Pathology Know Healthcare Logo
Lily Foundation Logo
Medical Research Future Fund Logo
Metabolic Dietary Disorders Australia Logo
Mito Action Logo
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Mito Canada Logo
Rare Voices Australia Logo
Research Australia Logo
Sanfilippo Children's Foundation Logo
Tuberous Sclerosis Australia Logo
United Mitochondrial Disease Foundation Logo

About Us

Mito Foundation supports people affected by mitochondrial disease (mito), funds essential research into the prevention, diagnosis, treatment and cures of mitochondrial disorders, and increases awareness and education about this devastating disease.

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The Mito Foundation would like to acknowledge the traditional custodians of the land on which we live and work. We pay respect to their cultures and to elders past, present and emerging. We extend that respect to all Aboriginal and Torres Strait Islander peoples today.

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