Mitochondrial disease (mito) is complicated, and when you or your child receive a diagnosis of mito you may experience many different emotions. It's completely understandable if you are feeling overwhelmed or uncertain. During this time, it's important to be kind to yourself and seek the support you need to navigate this journey. 

Click on the links below for a brief overview of mito and where to go to find support. 

First steps after a diagnosis

Step 1: Find out about mito

Step 2: Learn how to manage mito

Step 3: Access support

Receiving a diagnosis of mito may leave you experiencing a rollercoaster of emotions. We've heard from the mito community that having information and support at your fingertips can make a big difference.  

If you want to talk to someone, call our helpline at 1300 977 180. For more information and additional support, please follow the links provided below.  

Adults with  mito

Shelley Beverly (with husband James) at her home near Margate in southern Tasmania . 
For GoodWeekend mitochondrial donation story.
photography  Peter Mathew

Children with mito

image_6483441 (8)

When I was diagnosed, I didn't think I needed support. My family started asking questions and using Google to find out information, and came across Mito Foundation. I wish I had reached out earlier, as when I did, the team talked me through how they can help and provided me with the information I really needed. And, really importantly connected me to people having a similar experience to me. All it takes is a phone call to say, hey, can you help me?

Mito community member, 2023

Disclaimer: Resources provided by the Australian Mitochondrial Disease Foundation Limited (Mito Foundation), offers general information and is not a substitute for medical advice. It is essential to assess the suitability of the content for your individual circumstances and make decisions based on your medical condition. The information’s accuracy is subject to change, and we do not guarantee ongoing currency or availability. While efforts are made to ensure accuracy, Mito Foundation is not obligated to provide updated information. The copyright for this document and its content belongs to, or is licensed to, Mito Foundation, and reproduction without prior written consent is prohibited.

Author(s): Mito Foundation
Reviewer(s): Professor John Christodoulou AM MB BS PhD FRACP FRCPA FHGSA
Version: 1
Date published: 28 November 2023