The purpose of the Australian Mitochondrial Disease Exercise Physiology Network (AMEPN) is to improve service delivery and quality of life for people with mitochondrial disease (mito) by:

  • Piloting a clinical network as a model of improving clinical practices, quality and safety of services and awareness and education of mito within allied health specialities
  • Connecting Accredited Exercise Physiologists interested in or involved in the care of mito patients in Australia
  • Fostering education, research and disseminating knowledge
  • Engaging members, medical professionals, consumers and other stakeholders in decision making about best practices for exercise physiology regarding mito

 

Principle Functions

The principle functions of the AMEPN is to:

  • Develop, review and use evidence-based standards of care, assessment tools, guidelines and pathways to promote standardisation of best care practices and principles
  • Review unjustified variation in service quality or efficiency, define targets for improvement and develop strategies to achieve such improvement
  • Liaise with external bodies, such as Exercise and Sports Science Australia (ESSA), research institutes, and tertiary and consumer organisations to identify opportunities for collaboration
  • Provide information and guidance for the development, delivery and evaluation of service improvement activities to improve outcomes for people with mito and carers
  • Develop an open, transparent and supportive environment for members

 

The Mito Foundation will provide support including:

  • Assistance with the preparation of meeting agendas
  • Coordinating the scheduling of meetings
  • Attending meetings, provide information as needed and participate in discussion of agenda items
  • Coordinating logistical arrangements necessary to conduct meetings. Meetings will generally be held via teleconference
  • Ensuring accurate minutes of all official proceedings are available for review

 

The foundation will provide future updates on this project as they emerge.