The Australian Mitochondrial Disease Exercise Physiology Network is a clinical network of passionate Accredited Exercise Physiologists (AEPs) from around Australia who voluntarily collaborate to improve clinical practices and patient care for mitochondrial disease (mito) within the exercise physiology field.
The Mito Foundation established the network in March 2020, allowing AEPs with an interest and expertise in mito to connect for the first time. Since then the network’s members have already taken great strides towards improving treatment practices and patient safety within the field.
What is the purpose of the network?
- Connect health professionals, consumers and other stakeholders interested in or involved in the care of people impacted by mito in Australia to engage in decision making about best practices for mito
- Develop an open, transparent and supportive environment for members that fosters education, research and the dissemination of knowledge
- Develop, review and use evidence-based standards of care, assessment tools, guidelines and pathways to promote standardisation of best care practices and principles
- Review unjustified variation in service quality or efficiency, defines targets for improvement and develop strategies to achieve such improvement
- Liaise with external bodies research institutes, and tertiary and consumer organisations to identify opportunities for collaboration
- Provide information and guidance for the development, delivery and evaluation of service improvement activities to improve outcomes for people impacted by mito and their carers
The group meets via Zoom bi-monthly to assist each other with patient cases, share knowledge and work on projects. The Mito Foundation assists by providing administrative and logistical support.
The network can provide guidance to non-member professionals treating people impacted by mito.