Posts by Communications User
Mitochondrial donation: Have your say on the proposed introduction
A consultation paper has been released outlining the government’s proposed two stage approach to introducing mitochondrial donation into Australia. The consultation paper describes measures aligned with those implemented in the UK and does indicate that all impacted families who are ready to start a family would have access to mitochondrial donation in Stage 1. Members…
Read MoreThank you Pam Hausler
After many years of dedicated support, Pam Hausler is resigning from our Mito Community Advisory Panel (MCAP). Pam volunteered for several years in the Sydney office before joining MCAP. She has a personal connection to the mito cause; her daughter Shayli, who passed away in 1990, was one of the first mito patients diagnosed in…
Read MoreChristmas Appeal 2020: Let’s recognise mito parents!
This Christmas period, the Mito Foundation would like to recognise the tireless efforts of our mito parents. Kat is one of those parents. Kat’s son Noah has mito which affects every part of him from the top of his head to the tips of his toes. Noah has only 20 safe foods which he’s fed…
Read More‘Markets Trading Day for Charity’ to launch 26 November 2020
Join Australia’s first industry-wide Charity Trading Day on 26 November and be a force for good. The ASX Refinitiv Charity Foundation is calling on the collective power of the financial markets industry to donate a fixed amount or a portion of revenue to charity. The goal will be to raise $200,000 from a single…
Read MoreA Message From Our Patron, PM Scott Morrison
Watch Prime Minister Scott Morrison’s very supportive message during World Mitochondrial Disease Week.
Read MoreImproving Website Accessibility
The foundation recently redeveloped three fact sheets to ensure they comply with accessibility best practice. Please check out the new fact sheets and let us know your thoughts.
Read MorePREFER Study: Share your thoughts on potential treatments of mito
Researchers from Newcastle University in the UK are leading an international study known as PREFER. The study aims to explore the views of people living with mitochondrial disease (mito) regarding the risks and benefits associated with potential treatments for the disease. The study involves a short online survey, where your insights will inform the research process of…
Read MoreAustralian Clinical Standards of Care: Have your say
The Mito Foundation is pleased to offer mitochondrial disease (mito) patients a unique opportunity to contribute to the effective implementation of clinical standards of care for mito in Australia. This project, funded by Mito Foundation and led by Professor John Christodoulou, aims to establish the best approach to implementing new Australian guidelines, adapted from the US health system for…
Read MoreWelcome Our New MCAP Chair and Co-Chair
After two years as Chair for the Mito Community Advisory Panel (MCAP), Mia Bell has chosen to pass the baton on and we are pleased to announce the appointment of Melinda Macauley as the new MCAP Chair, and Fiona Elmer as MCAP Deputy Chair. The foundation would like to acknowledge the meaningful contribution Mia has made in her role as MCAP…
Read MoreCOVID-19 Update: A message from our CEO
A message from our CEO Thursday, 9 April 2020 Sean Murray CEO, Mito Foundation The Mito Foundation continues to diligently monitor the public health response to the COVID-19 pandemic, paying particular attention to the impact this has on people with mitochondrial disease (mito). We recognise that many members of the mito community are part of…
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