Posts by Communications User

Researchers from Newcastle University in the UK are leading an international study known as PREFER. The study aims to explore the views of people living with mitochondrial disease (mito) regarding the risks and benefits associated with potential treatments for the disease.   The study involves a short online survey, where your insights will inform the research process of…

The Mito Foundation is pleased to offer mitochondrial disease (mito) patients a unique opportunity to contribute to the effective implementation of clinical standards of care for mito in Australia. This project, funded by Mito Foundation and led by Professor John Christodoulou, aims to establish the best approach to implementing new Australian guidelines, adapted from the US health system for…

After two years as Chair for the Mito Community Advisory Panel (MCAP), Mia Bell has chosen to pass the baton on and we are pleased to announce the appointment of Melinda Macauley as the new MCAP Chair, and Fiona Elmer as MCAP Deputy Chair. The foundation would like to acknowledge the meaningful contribution Mia has made in her role as MCAP…

A message from our CEO Thursday, 9 April 2020 Sean Murray CEO, Mito Foundation The Mito Foundation continues to diligently monitor the public health response to the COVID-19 pandemic, paying particular attention to the impact this has on people with mitochondrial disease (mito). We recognise that many members of the mito community are part of…

The United Mitochondrial Disease Foundation (UMDF) has opened applications to their 2020 grant cycle. Applications are welcome from international researchers. Available grants are outlined below.   Postdoctoral Fellow (accelerators)   This program was launched in 2019 as a new mechanism to marry donor engagement with research grant funding. Applications from Postdoctoral Fellows undergo standard peer…

The Leigh Syndrome International Consortium, a patient-driven research network steered by five of the world’s leading mitochondrial disease patient advocacy groups, is delighted to announce it will grant a total of $179,000 USD to six research teams that are actively working toward improving diagnosis, developing treatments and optimising clinical care for Leigh syndrome patients. As…

Over the last six months your donations have made a substantial difference to people affected by mitochondrial disease (mito). You have enabled services to support patients today, while providing hope for the future by funding research and advocacy. Thank you! Your donations have delivered: 50% reduction in wait times for the Royal North Shore Hospital…

The holiday season is here which means celebrating with family and friends. But for those in our mito community dealing with grief, it can be a particularly challenging time. There are a few things you can do over the holidays that will help you manage your grief and support your loved ones. Please remember that there is always…

The Mito Foundation relies on the generosity of donors to continue our vital work for people affected by mitochondrial disease (mito). These donations enable us to support patients today, whilst providing hope for the future by funding research and advocacy.      See below a snapshot of the great progress made over the last six months. (Download image here)…