A consultation paper has been released outlining the government’s proposed two stage approach to introducing mitochondrial donation into Australia. The consultation paper describes measures aligned with those implemented in the UK and does indicate that all impacted families who are ready to start a family would have access to mitochondrial donation in Stage 1. Members…

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After many years of dedicated support, Pam Hausler is resigning from our Mito Community Advisory Panel (MCAP). Pam volunteered for several years in the Sydney office before joining MCAP. She has a personal connection to the mito cause; her daughter Shayli, who passed away in 1990, was one of the first mito patients diagnosed in…

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Researchers from Newcastle University in the UK are leading an international study known as PREFER. The study aims to explore the views of people living with mitochondrial disease (mito) regarding the risks and benefits associated with potential treatments for the disease.   The study involves a short online survey, where your insights will inform the research process of…

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The Mito Foundation is pleased to offer mitochondrial disease (mito) patients a unique opportunity to contribute to the effective implementation of clinical standards of care for mito in Australia. This project, funded by Mito Foundation and led by Professor John Christodoulou, aims to establish the best approach to implementing new Australian guidelines, adapted from the US health system for…

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After two years as Chair for the Mito Community Advisory Panel (MCAP), Mia Bell has chosen to pass the baton on and we are pleased to announce the appointment of Melinda Macauley as the new MCAP Chair, and Fiona Elmer as MCAP Deputy Chair. The foundation would like to acknowledge the meaningful contribution Mia has made in her role as MCAP…

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A message from our CEO Thursday, 9 April 2020 Sean Murray CEO, Mito Foundation The Mito Foundation continues to diligently monitor the public health response to the COVID-19 pandemic, paying particular attention to the impact this has on people with mitochondrial disease (mito). We recognise that many members of the mito community are part of…

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