When your child has a chronic illness like mito, it’s crucial to let others know what they need. This doesn't mean your child's care team isn't supportive. They may genuinely want to help. However, some people with mito find that their concerns are not taken seriously, leading to a delay in getting the right care for many years.

Advocating for your child

Get in touch by contacting our Helpline at 1300 977 180 explore our information and resources to find the help you need.

Here are some ways to help you be your child's advocate:

Disclaimer: Resources provided by the Australian Mitochondrial Disease Foundation Limited (Mito Foundation), offers general information and is not a substitute for medical advice. It is essential to assess the suitability of the content for your individual circumstances and make decisions based on your medical condition. The information’s accuracy is subject to change, and we do not guarantee ongoing currency or availability. While efforts are made to ensure accuracy, Mito Foundation is not obligated to provide updated information. The copyright for this document and its content belongs to, or is licensed to, Mito Foundation, and reproduction without prior written consent is prohibited.

Author(s): Mito Foundation
Reviewer(s): Members of the mito community
Version: 1
Date published: Wednesday 29 November 2023