Having the right people around can really help your child's overall health and wellbeing when they have mitochondrial disease (mito). Creating a well-informed care team means you will be able to call on support when your child needs and deal with any challenges your family might be facing.

The unique way that mito affects your child will determine which specialists they need to see. Having one key doctor coordinating these tests and other parts of your child's health care may be helpful. This could be a paediatrician, a metabolic specialist, a neurologist, or your general practitioner (GP).

If you need more information or someone to talk to, call our helpline at 1300 977 180 or contact us via the form.

Members of a mito care team

Your child's care team will closely monitor different body systems relevant to their health. We've included helpful icons to represent these systems. Under each icon, you'll find a list of health professionals who may be involved in your child's care. Not all people with mito will need to see these health professionals.

Brain Brain and Central Nervous System

Neurologist

A neurologist is a specialist physician who diagnoses and treats conditions of the brain, spinal cord and nerves. This can include muscle diseases and disorders that affect thinking and behaviour.

Developmental Paediatrician

Developmental Paediatricians have specialty interest, training and experience in the development of children. How they grow, how they acquire knowledge and skills, and how they learn to behave and socialise.

Endocrine System Diet, Health and Endocrine System
Immune System Immune System
Respiratory Respiratory System
Urinary System Urinary System
Cardiovascular Cardivascular System
Auditory Auditory System
Visual System Visual System
Psychology Psychology and Mental Health
Digestive System Digestive System

Find a health professional

Find a health professional near you.

Talk to your care team about mito

Information and resources for your care team 

Care standards for mito

Recommendations for health professionals who diagnose and manage patients with mitochondrial disease

Palliative care provides comfort and support to your child and family.

What is palliative care?

Palliative care can ease the symptoms, discomfort, and stress of living with mito for your child and family.

How is palliative care different from hospice care?

Your child does not need to be in hospice to receive palliative care. Your child can receive palliative care wherever they receive care: in the hospital, during clinic visits, or at home. 

Hospice care focuses on a person’s final months of life, but palliative care is available to your child at any time following a diagnosis of mito. Some children receive palliative care for many years.

Allied health

Our Pathways Telehealth nurse will work with you to develop a tailor-made care plan.

Access the NDIS Navigation Service for resources, education and 1:1 guidance on the NDIS.

Useful resources

Disclaimer: Resources provided by the Australian Mitochondrial Disease Foundation Limited (Mito Foundation), offers general information and is not a substitute for medical advice. It is essential to assess the suitability of the content for your individual circumstances and make decisions based on your medical condition. The information’s accuracy is subject to change, and we do not guarantee ongoing currency or availability. While efforts are made to ensure accuracy, Mito Foundation is not obligated to provide updated information. The copyright for this document and its content belongs to, or is licensed to, Mito Foundation, and reproduction without prior written consent is prohibited.

Author(s): Mito Foundation
Reviewer(s): Medical review by Professor John Christodolou AM, Dr Joy Lee and Dr Christine Wools. Reviewed by the Mito Community Advisory Panel.

Version: 1
Date published: Wednesday 29 November 2023