News

A consultation paper has been released outlining the government’s proposed two stage approach to introducing mitochondrial donation into Australia. The consultation paper describes measures aligned with those implemented in the UK and does indicate that all impacted families who are ready to start a family would have access to mitochondrial donation in Stage 1. Members…

After many years of dedicated support, Pam Hausler is resigning from our Mito Community Advisory Panel (MCAP). Pam volunteered for several years in the Sydney office before joining MCAP. She has a personal connection to the mito cause; her daughter Shayli, who passed away in 1990, was one of the first mito patients diagnosed in…

This Christmas period, the Mito Foundation would like to recognise the tireless efforts of our mito parents. Kat is one of those parents. Kat’s son Noah has mito which affects every part of him from the top of his head to the tips of his toes. Noah has only 20 safe foods which he’s fed…

Join Australia’s first industry-wide Charity Trading Day on 26 November and be a force for good.   The ASX Refinitiv Charity Foundation is calling on the collective power of the financial markets industry to donate a fixed amount or a portion of revenue to charity. The goal will be to raise $200,000 from a single…

Watch Prime Minister Scott Morrison’s very supportive message during World Mitochondrial Disease Week.

The Mito Foundation is fortunate to work with incredible individuals who go the extra mile to support people with mito. Each year we recognise some of those whose exceptional efforts have had a significant impact on the mito community. Congratulations to the following: Mito Foundation Chairman’s Award – Shelley Beverley Shelley has been extremely active…

The foundation recently redeveloped three fact sheets to ensure they comply with accessibility best practice. Please check out the new fact sheets and let us know your thoughts.

Researchers from Newcastle University in the UK are leading an international study known as PREFER. The study aims to explore the views of people living with mitochondrial disease (mito) regarding the risks and benefits associated with potential treatments for the disease.   The study involves a short online survey, where your insights will inform the research process of…

After two years as Chair for the Mito Community Advisory Panel (MCAP), Mia Bell has chosen to pass the baton on and we are pleased to announce the appointment of Melinda Macauley as the new MCAP Chair, and Fiona Elmer as MCAP Deputy Chair. The foundation would like to acknowledge the meaningful contribution Mia has made in her role as MCAP…

March 2021 Update People with mitochondrial disease, and their carers, understandably have many questions regarding the COVID-19 vaccine as Australia begins to roll out the national vaccination program. While we cannot provide medical advice, we have collated some useful resources for you below.  Please consult your medical practitioner regarding questions specific to your existing health concerns.  If you have questions regarding the COVID-19…