News

Last November, Sian Cave reached out to the Mito Foundation Patient Pathways Program after receiving a confirmed diagnosis of MELAS (Mitochondrial Encephalopathy, Lactic Acidosis, and Stroke-like episodes). Michele, the foundation’s Patient Pathways Telehealth Nurse took the time to understand Sian’s health goals and developed a plan to help her achieve them. “Michele was enormously helpful”…

Glen Watts, thank you for your commitment.   After six years of valuable contribution, Glen Watts has resigned from The Mito Foundation Board of Directors. When Glen first joined in 2015, he brought a level of executive experience that was integral to the foundation’s development. He served as an invaluable mentor to our CEO Sean…

This week marked a very important milestone towards legalising mitochondrial donation. On Wednesday 24 March, Health Minister Greg Hunt introduced the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 to Parliament.

People impacted by mito and their families have many questions about the new COVID-19 vaccine including whether to take it, the potential risks and benefits and whether people with mito will be prioritised.

March 2021 Update People with mitochondrial disease, and their carers, understandably have many questions regarding the COVID-19 vaccine as Australia begins to roll out the national vaccination program. While we cannot provide medical advice, we have collated some useful resources for you below.  Please consult your medical practitioner regarding questions specific to your existing health concerns.  If you have questions regarding the COVID-19…

After many years of dedicated support, Pam Hausler is resigning from our Mito Community Advisory Panel (MCAP). Pam volunteered for several years in the Sydney office before joining MCAP. She has a personal connection to the mito cause; her daughter Shayli, who passed away in 1990, was one of the first mito patients diagnosed in…

A consultation paper has been released outlining the government’s proposed two stage approach to introducing mitochondrial donation into Australia. The consultation paper describes measures aligned with those implemented in the UK and does indicate that all impacted families who are ready to start a family would have access to mitochondrial donation in Stage 1. Members…

This Christmas period, the Mito Foundation would like to recognise the tireless efforts of our mito parents. Kat is one of those parents. Kat’s son Noah has mito which affects every part of him from the top of his head to the tips of his toes. Noah has only 20 safe foods which he’s fed…

Join Australia’s first industry-wide Charity Trading Day on 26 November and be a force for good.   The ASX Refinitiv Charity Foundation is calling on the collective power of the financial markets industry to donate a fixed amount or a portion of revenue to charity. The goal will be to raise $200,000 from a single…

The Mito Foundation is fortunate to work with incredible individuals who go the extra mile to support people with mito. Each year we recognise some of those whose exceptional efforts have had a significant impact on the mito community. Congratulations to the following: Mito Foundation Chairman’s Award – Shelley Beverley Shelley has been extremely active…