Mito Foundation is Australia’s peak body dedicated to supporting and empowering people affected by mitochondrial disease (mito). To achieve this work, we made the Community Engagement Approach. This outlines how we'll work with the mito community.
On this page, you'll find:
What do we mean when we say mito community?
- People impacted by mito, even if their diagnosis is uncertain or preliminary
- People supporting people impacted by mito. This includes parents, spouses, other family members and friends. We also include people who have supported someone who has since passed away.
The Community Engagement Approach
Through our partnership with the mito community, we will strive to:
This includes knowledge, skills and resilience that mito community members have developed to meet the challenges of living with mito. We will seek to incorporate this expertise into our work and involve community members in a way that values their expertise.
Our commitment to the mito community
What are we doing to improve our community engagement?
We recognise that Mito Foundation can improve how we engage with the mito community. This section describes current activities that aim to improve engagement.
Through our 2022 Mito Community Survey we recognised that we have limited engagement with mito community members who are male, younger adults, parents of school-aged children, culturally and linguistically diverse communities, and Aboriginal and Torres Strait Islander peoples.
We are trialling new approaches such as new peer support groups (Mito Meet-ups) to engage with these groups.