This dedicated Mito Parents Meet-up provides a space to connect directly with other parents of children with mito. Please see below the start time for your state:
- New South Wales, Victoria, Queensland, Australian Capital Territory or Tasmania: 11:30am
- South Australia or Northern Territory: 11:00am
- Western Australia: 9:00am
Be sure to join the dedicated Facebook group to connect with other mito parents. Visit the group here.
Get to know your host: Preeti Raghwani
I have been involved with the foundation in various different aspects seeking help and offering help where possible for two years. I have a background in physiotherapy and NDIS which puts me in good stead to support others through my own experiences.
I work part time as an NDIS Specialist Support Coordinator and am involved in the Child and Adolescent Health Service Consumer Advisory Council. I hope to study medicine some day. I was first introduced to the mito community after my beautiful little girl Ziya was diagnosed with the KARS genetic mutation, a rarer subtype of mitochondrial disease. Sadly, we lost Ziya in September 2019.
I hope to combine my professional and very personal experiences to support other parents of children with mito in as many ways as I can.
Get to know your host: Mia Bell
Originally from Adelaide, Mia was living in the UK when she was diagnosed with Mitochondrial Myopathy 3302 A>G in 2003. This diagnosis was reconfirmed in Australia in 2014.
Now living back in Adelaide, Mia works part-time and has two primary school aged children. There is an extensive family history of mito, and Mia has shared her story in aid of raising awareness of mito and in support of mito donation.
Mia held the position of MCAP Chair from 2018 -2020, has run the SA Support Group for Mito Foundation and volunteers on the Patient Support Network. Mia continues to be an active member of the mito community.