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This dedicated Mito Parents Meet-up provides a space to connect directly with other parents of children with mito. Please see below the start time for your state:

  • New South Wales, Victoria, Queensland, Australian Capital Territory or Tasmania: 12:00pm
  • South Australia or Northern Territory: 11:30am
  • Western Australia: 10:00am
The topic for this Mito Meet-up is “Discussing diagnosis and symptoms in children with mito”.

Be sure to join the dedicated Facebook group to connect with other mito parents. Visit the group here.

Get to know your host: Preeti Raghwani

I have been involved with the foundation in various different aspects seeking help and offering help where possible for two years. I have a background in physiotherapy and NDIS which puts me in good stead to support others through my own experiences.

I work part time as an NDIS Specialist Support Coordinator and am involved in the Child and Adolescent Health Service Consumer Advisory Council. I hope to study medicine some day. I was first introduced to the mito community after my beautiful little girl Ziya was diagnosed with the KARS genetic mutation, a rarer subtype of mitochondrial disease. Sadly, we lost Ziya in September 2019.

I hope to combine my professional and very personal experiences to support other parents of children with mito in as many ways as I can.

 

r of the mito community.

Event Location

Held Online via Zoom.

Date

Sun 20 Jun 2021

Start Time

12:00 pm AEST

End Time

1:00 pm AEST

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