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Digital Mito Parents Meet-up – May 2022

Sunday, 29 May @ 4:30 pm - 5:30 pm AEST

This dedicated Mito Parents Meet-up provides a space to connect directly with other parents of children with mito and is led by Preeti Raghwani and Mia Bell. Join other parents for a general catch-up or to discuss current topics of importance. Please scroll to the bottom of the page to register.

Below are the digital start times based on State/Territory:

  • WA: 2:30 PM
  • SA and NT: 4 PM
  • ACT, NSW, TAS, QLD or VIC: 4:30 PM

Be sure to join the dedicated Facebook group to connect with other mito parents. Visit the group here.

Get to know your hosts:

Preeti Raghwani


I have been involved with the foundation for about 2 years now and have been involved in various different aspects seeking help and offering help where possible. I have a background in physiotherapy and NDIS which puts me in good stead in various ways and aligns me aptly to support others through my own experiences.

I work part-time as an NDIS Specialist Support Coordinator and am involved in the Child and Adolescent Health Service Consumer Advisory Council as well as sitting my GAMSAT in the hopes of studying medicine someday. I was first introduced to the mito community after my beautiful little girl Ziya was diagnosed with the KARS genetic mutation which is a rarer subtype of mitochondrial disease. Sadly, we lost Ziya in September 2019.

I hope to marry my professional and very personal experiences to facilitate the Mito Parents Meet-up to help other parents of children with mito in as many ways as I can.

Please advise the Mito Foundation, with as much notice as possible, if you have registered for this event but are unable to attend.

Mia Bell

Mia Bell

Originally from Adelaide, Mia was living in the UK when she was diagnosed with Mitochondrial Myopathy 3302 A>G in 2003. This diagnosis was reconfirmed in Australia in 2014.

Now living back in Adelaide, Mia works part-time and has two school-aged children. There is an extensive family history of mito, and Mia has shared her story in aid of raising awareness of mito and in support of mito donation.
Mia held the position of MCAP Chair from 2018 to 2020 and has run SA Support Groups for Mito Foundation. She continues to be an active member of the mito community.

Please advise the Mito Foundation, with as much notice as possible, if you have registered for this event but are unable to attend.

Event Location

Date

Sun 29 May 2022

Start Time

4:30 pm AEST

End Time

5:30 pm AEST

Enter Your Details to Register