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This dedicated Mito Parents Meet-up provides a space to connect directly with other parents of children with mito.
Your hosts for the upcoming call Mia Bell and Preeti Raghwani, will lead a discussion around this month’s theme: Mental Health.

Be sure to join the dedicated Facebook group to connect with other mito parents. Visit the group here.

Get to know your host: Preeti Raghwani

I have been involved with the foundation for about 2 years now and have been involved in various different aspects seeking help and offering help where possible. I have a background in physiotherapy and NDIS which puts me in good stead in various ways and aligns me aptly to support others through my own experiences.

I work part time as an NDIS Specialist Support Coordinator and am involved in the Child and Adolescent Health Service Consumer Advisory Council as well as sitting my GAMSAT in the hopes of studying medicine some day. I was first introduced to the mito community after my beautiful little girl Ziya was diagnosed with the KARS genetic mutation which is a rarer subtype of mitochondrial disease. Sadly, we lost Ziya in September 2019.

I hope to marry my professional and very personal experiences to facilitate the Mito Parents Meet-up to help other parents of children with mito in as many ways as I can.

 

Get to know your host: Mia Bell

Originally from Adelaide, Mia was living in the UK when she was diagnosed with Mitochondrial Myopathy 3302 A>G in 2003. This diagnosis was reconfirmed in Australia in 2014.
Now living back in Adelaide, Mia works part-time and has two primary school aged children. There is an extensive family history of mito, and Mia has shared her story in aid of raising awareness of mito and in support of mito donation.

Mia held the position of MCAP Chair from 2018 -2020, has run the SA Support Group for Mito Foundation and volunteers on the Patient Support Network. Mia continues to be an active member of the mito community.

Event Location

Held Online via Zoom.

Date

Tue 6 Oct 2020

Start Time

7:30 pm AEDT

End Time

8:30 pm AEDT

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