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Digital National Mito Meet-up – June 2022

Saturday, 11 June @ 10:30 am - 11:30 am AEST

Mito Meet-ups are led by mito community members and offer you the opportunity to connect with your local community.

Please scroll to the bottom of the page to register for this Digital Mito Meet-up.

Below are the start times based on State/Territory:
🕥QLD, ACT, NSW, TAS, VIC: 1030am
🕙SA, NT: 10 am
🕣WA: 0830 am

Please advise the Mito Foundation, with as much notice as possible, if you have registered for this event but are unable to attend.

Get to know your host:

Shelley Beverley

Shelley Beverley

Introduce yourself and your role within the meet-up
I am originally from South Africa and moved to Tasmania in 2010. I have found connecting with others to be very beneficial and would love to continue to connect locally. My role as host of the National Meet-up is to facilitate a support group where we can share stories and resources.

Tell us a little about your journey with mito
I lost my mother and brother to Mito within 16 months of each other. I then received a diagnosis myself and have continued to learn throughout my journey. I have developed a strong passion to learn as much as possible about the disease and connect with others to hear their stories. I have established a strong team of specialists who can learn alongside me and support me to fight against the disease.

My diagnosis is MELAS, which currently impacts me with symptoms of bilateral sensorineural hearing loss, daytime hypertension and left thickening of the heart, diabetes (insulin-dependent), muscle fatigue and weakness, mild gastroparesis and high lactate levels. I am still learning a great deal and my main focus at the moment is to continue to create awareness of Mito and assist to legalise mitochondrial donation in Australia.

How have Mito Meet-ups helped you in the past?
Mito Meet-ups provide a safe space to talk about our journeys and share our stories. It also provides an opportunity for us to hear from those more experienced or possibly resources we were not aware of. Unfortunately, this disease can make you feel incredibly alone and knowing that you have a support group who share these feelings can help you connect on a different level. It is always comforting to know we are fighting this together.

What atmosphere would you like to create in the group?
I would like for the National support group to be a place where we can share our journeys, wherever we are! For us to feel that it is a safe and non-judgemental place to join, regardless of whether we want to verbally share or not. Connecting with each other allows us to ask questions we are not comfortable asking others and talking about anything and everything that mito impacts. I am hoping it is a space where we can feel positive to catch up and enjoy the time together.

 

Event Location

Date

Sat 11 Jun 2022

Start Time

10:30 am AEST

End Time

11:30 am AEST

Enter Your Details to Register