Please note, if you are joining from New South Wales, the start time is 1:00pm.
Get to know your host: Melinda Macaulay and Rebecca Patterson
Mel showed symptoms of mito for 17 frustrating years before being diagnosed with Chronic Progressive External Ophthalmoplegia (CPEO) in 2011.
She operates her own coaching business and is a motivational speaker where she often speaks about rising above our own self-imposed ‘dis-abilities’ and limitations regardless of personal circumstances.
Mel and her husband Andrew wrote the training program for the Bloody Long Walk, and she also enjoys volunteering and participating in the event. In 2016 Mel and Andrew cycled 1,350km unsupported from Hervey Bay (QLD) to Circular Quay, Sydney (NSW) to raise awareness and funds for the Mito Foundation.
Mel understands how frustrating, isolating and misunderstood this condition can be and has found the Mito Foundation support services to be extremely beneficial.
Bec was diagnosed with mitochondrial disease (mito) in 2016, after suffering ongoing symptoms for a number of years. She lives on the Sunshine Coast in Queensland and takes every opportunity she can to raise awareness for mito. This includes her blog “Girl with the Green Bow” that launched in 2017, to track her journey living with mito.
Bec has collaborated with Alice Gibson, owner of Mito Merch and launched her own “Bow collection” range of clothing.
Bec understands how isolating living with mito can be.