This dedicated Mito Parents Meet-up provides a space to connect directly with other parents of children with mito. Please see below the start time for your state:
- New South Wales, Victoria, Australian Capital Territory or Tasmania: 7:00pm
- South Australia: 6:30pm
- Queensland: 6:00pm
- Northern Territory: 5:30pm
- Western Australia: 4:00pm
Be sure to join the dedicated Facebook group to connect with other mito parents. Visit the group here.
Get to know your host: Preeti Raghwani
I have been involved with the foundation in various different aspects seeking help and offering help where possible for two years. I have a background in physiotherapy and NDIS which puts me in good stead to support others through my own experiences.
I work part time as an NDIS Specialist Support Coordinator and am involved in the Child and Adolescent Health Service Consumer Advisory Council. I hope to study medicine some day. I was first introduced to the mito community after my beautiful little girl Ziya was diagnosed with the KARS genetic mutation, a rarer subtype of mitochondrial disease. Sadly, we lost Ziya in September 2019.
I hope to combine my professional and very personal experiences to support other parents of children with mito in as many ways as I can.