Managing the challenges of mitochondrial disease (mito) alongside all of life's other responsibilities can be overwhelming. The following webpage is designed to ease this stress by providing useful resources and services to help manage your everyday life with mito.
Personal Stories
Thomas Dow (Tom) was born in 1986 and, except for childhood asthma, was healthy, happy and very cute with a caring and engaging nature. Tom reached his childhood milestones quite early; walked at 12 months and talked by 18 months. At the age of four, Tom started to walk differently and upon a visit to the doctor, the devastating journey of medical investigation began which identified rapid deterioration, illness and, eventually, severe disability.
Key Webpages
Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.
Consensus-based recommendations for medical professionals who diagnose and manage patients with mitochondrial diseases
Attend a support event in your local area or online, including Mito Information Days, Mito Meet-ups and Mito Connect Calls to keep you informed and connected.
The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.
