Managing the challenges of mitochondrial disease (mito) alongside all other family responsibilities can be daunting. The following webpage is designed to provide useful resources and services to manage your child's journey with mito and help you maintain the energy to focus on your family.

Key Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

Attend a support event in your local area or online, including Information Days, Mito Parents Meet-ups and Mito Connect Calls to keep you informed and connected.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.

Helpful Resources

Link to Palliative Care for Mito Kids Fact Sheet

Palliative Care for Mito Kids

Fact Sheet

This fact sheet helps you navigate the considerations of palliative care for your child and how to access the service.

Link to Mindfulness to Manage Your Health and Life Changes Video

Mindfulness to Manage Your Health and Life Changes

Video
Carolyn Uhlmann (Psychologist), provides great tips to manage the health and wellbeing changes that come with mito through practical mindfulness techniques.
Link to First Steps with Kids Fact Sheet

First Steps with Kids

Fact Sheet

This fact sheet can help to guide you in some of the first steps you may want to take after receiving a mito diagnosis for your child and aims to help you develop a plan for the future.

Link to Sample Letter to Your Child's Teacher Webpage

Sample Letter to Your Child's Teacher

Webpage

This template letter removes the stress of knowing how to communicate your child’s condition with their school. Use it to help your child receive the support they need at school.

Link to Patient Pathways Program Introduction Video

Patient Pathways Program Introduction

Video

Michele Hemmings (Patient Pathways Telehealth Nurse) introduces the Patient Pathways Program and shares why members of the mito community can benefit from accessing this service. To learn more, please call our Helpline on 1300 977 180 or email helpline@mito.org.au

Link to Mito 4 Kids: A School Education Program About Mito Webpage

Mito 4 Kids: A School Education Program About Mito

Webpage

Mito 4 Kids is a school education program for children in years K-6. The program is designed to help school aged children, their parents and teachers better understand the needs of children who are affected by mito.

Link to Supporting Your Child at School Fact Sheet

Supporting Your Child at School

Fact Sheet

This fact sheet provides tips to support your child’s school life. Everything from nutrition to communicating with your child’s school is included here.

Link to Fatigue in Mitochondrial Disease Video

Fatigue in Mitochondrial Disease

Video

Dr Christine Wools explores the different elements of fatigue, looking at how it is measured, different contributors and the treatments available.

Link to A Little Book About Mito Fact Sheet

A Little Book About Mito

Fact Sheet

A brightly illustrated book to help you guide your child through their mito diagnosis.