Managing the challenges of mitochondrial disease (mito) alongside all other family responsibilities can be daunting. The following webpage is designed to provide useful resources and services to manage your child's journey with mito and help you maintain the energy to focus on your family.
Rex has a significant disability and some developmental delay – he is unable to walk and talk, requires ongoing assistance with ambulation, dressing, feeding, toileting – he continually surprises his family, against all odds, with his increasing levels of comprehension.
Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.
Consensus-based recommendations for medical professionals who diagnose and manage patients with mitochondrial diseases
Attend a support event in your local area or online, including Mito Information Days, Mito Parents Meet-ups and Mito Connect Calls to keep you informed and connected.
The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.