Costs associated with a chronic disease such as mito can soon escalate and can be compounded by a loss of income. The Australian Government offers payments to people suffering from a disabling illness, their family members and carers. Unfortunately these payment systems can be confusing and time-consuming to access.

The Mito Foundation has attempted to simplify the process by creating an index of relevant payments. The list will expand over time, as the Mito Foundation becomes aware of additional payments which members of the community are eligible for.

If you receive a payment or service that you think the mito community should know about, please let us know. For further information please contact our Helpline on 1300 977 180 or email

Payments for patients

Payments for youth

Payments for parents

Payments for carers

Disclaimer: Resources provided by the Australian Mitochondrial Disease Foundation Limited (Mito Foundation), offers general information and is not a substitute for medical advice. It is essential to assess the suitability of the content for your individual circumstances and make decisions based on your medical condition. The information’s accuracy is subject to change, and we do not guarantee ongoing currency or availability. While efforts are made to ensure accuracy, Mito Foundation is not obligated to provide updated information. The copyright for this document and its content belongs to, or is licensed to, Mito Foundation, and reproduction without prior written consent is prohibited.

Author(s): Mito Foundation
Version: 1.1
Date published: 10 September 2023