The Mito Foundation has developed resources to help mito patients manage their day to day life, stay healthy, and make their own health care decisions.
Fatigue and MitoView Fact Sheet Page
Fatigue is a symptom that varies from person to person and can’t easily be seen from the outside. It’s a common symptom in people diagnosed with mitochondrial disease (mito), and can contribute to feelings of loneliness and frustration. To find out what might be contributing to fatigue, doctors can do blood tests, check for sleep problems, heart and lung issues and refer you to other specialists. When managing fatigue, it’s important to reduce stress, drink enough water, avoid too much caffeine and alcohol, do relaxing activities, and talk to others about fatigue.
Information about My Health Record and what it means for mito patients and their carers.
Guidance on preparing for travel, types of transport, travelling with a child with mito and more. Refer also to Travelling with Equipment and Travelling with Medications.
Guidance on packing and preparing your medication before travel and more. Refer also to Travelling with Mito and Travelling with Equipment.
Guidance on travelling with a wheelchair or assistance animals. Refer also to Travelling with Mito and Travelling with Medication.
This fact sheet guides parents of children with mito through the first steps they may want to take after receiving a diagnosis and aims to help develop a plan for the future.
This fact sheet aims to help patients navigate through information about mito and the health system and to provide an overview of considerations for the future.
This fact sheet explains how mito can be inherited and the reproductive options that may be available to couples in order to prevent the inheritance of mito.
This fact sheet explains what travel insurance is, what you can claim, and how people with mito can apply.
This fact sheet is designed to help you assess the quality and accuracy of information you find online.
This fact sheet is designed to help you prepare for medical appointments with specialists.
This fact sheet provides information to help those living in rural and regional Australia access specialist care. It includes information on government support and other support services.
This fact sheet outlines the benefits of obtaining a genetic diagnosis of mitochondrial disease. It includes relevant case studies and is a useful document to provide to your GP and specialists.
Everyone should have the freedom to make informed decisions about their healthcare. This fact sheet discusses advocacy services which support decision making and help resolve issues with health, disability and other services. It also provides information about advance care planning and appointing a Power of Attorney.
This fact sheet provides information about medical identification jewellery and phone apps as well as personal emergency response services/personal alarm call systems.
This book, written by Christy Balcells, Executive Director of MitoAction helps adult patients, parents, family members and carers how to achieve the best quality of life possible.
Paediatric palliative care is provided to children who have a progressive, life-limiting illness. It is a holistic approach which supports the physical, emotional, social and spiritual needs of your child and your family.
Palliative care is care and support provided to people who have a progressive, life-limiting illness. It recognises your unique needs when you are reaching the end of your life, as well as the needs of your family and carers.
When it comes to posting your own genetic diagnosis or results on social media or any other means of public communication, you may not think twice about the impact of your decision.
A diagnosis of mito for you or a loved one can be very stressful and may leave you experiencing a rollercoaster of emotions. The stress of living with mito and learning to manage the multiple aspects of the condition can affect the mental wellbeing of everyone affected.