Living with Mito

Living with Mito

The Mito Foundation has developed resources to help mito patients manage their day to day life, stay healthy, and make their own health care decisions.

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Travelling with Mito

Guidance on preparing for travel, types of transport, travelling with a child with mito and more. Refer also to Travelling with Equipment and Travelling with Medications.

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Travelling with Medications

Guidance on packing and preparing your medication before travel and more. Refer also to Travelling with Mito and Travelling with Equipment.

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Travelling with Equipment

Guidance on travelling with a wheelchair or assistance animals. Refer also to Travelling with Mito and Travelling with Medication.

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First Steps with Kids

This fact sheet guides parents of children with mito through the first steps they may want to take after receiving a diagnosis and aims to help develop a plan for the future.

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First Steps with Mito

This fact sheet aims to help patients navigate through information about mito and the health system and to provide an overview of considerations for the future.

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Reproductive Options

This fact sheet explains how mito can be inherited and the reproductive options that may be available to couples in order to prevent the inheritance of mito.

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Travel Insurance

This fact sheet explains what travel insurance is, what you can claim, and how people with mito can apply.

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Evaluating Online Health Information

This fact sheet is designed to help you assess the quality and accuracy of information you find online.

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Preparing for Specialist Medical Appointments

This fact sheet is designed to help you prepare for medical appointments with specialists.

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Nutrition for Mitochondrial Disease

This fact sheet contains information on eating a balanced diet to help with overall health, and to assist mitochondrial function.

Picture1Accessing Healthcare for Mitochondrial Disease Patients in Rural and Regional Australia

This fact sheet provides information to help those living in rural and regional Australia access specialist care. It includes information on government support and other support services.

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Benefits of a Genetic Diagnosis of Mitochondrial Disease

This fact sheet outlines the benefits of obtaining a genetic diagnosis of mitochondrial disease. It includes relevant case studies and is a useful document to provide to your GP and specialists.

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Making Health and Medical Decisions

Everyone should have the freedom to make informed decisions about their healthcare.This fact sheet discusses advocacy services which support decision making and help resolve issues with health, disability and other services. It also provides information about advance care planning and appointing a Power of Attorney.

Picture1Medical Identification and Alerts

This fact sheet provides information about medical identification jewelry and phone apps as well as personal emergency response services/personal alarm call systems.

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Exercise and Mitochondrial Disease

Regular exercise is important for overall health, and may assist mitochondrial function. Learn more about exercise and mito, and about creating an exercise plan that suits you.

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Living Well with Mitochondrial Disease: A Handbook for Patients, Parents and Families

This book, written by Christy Balcells, Executive Director of MitoAction helps adult patients, parents, family members and carers how to achieve the best quality of life possible.