The Mito Foundation has developed resources to help mito patients manage their day to day life, stay healthy, and make their own health care decisions.

Featured Resources

Link to Genetic testing and mito Fact Sheet Page

Genetic testing and mito

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Information about genetic testing and mitochondrial disease (mito).

Link to Options for building your family Fact Sheet Page

Options for building your family

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If you are affected by mitochondrial disease (mito), there may be ways to lower the risk of passing mito on to your future children. When you are thinking about having children, it is important to be aware of all the options you have.

Link to Genetic counselling and mito Fact Sheet Page

Genetic counselling and mito

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Genetic counselling provides information about genetic conditions like mito, such as, how they are inherited and what it means for you.

Link to Managing mito at school Fact Sheet Page

Managing mito at school

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This resource provides tools to best help your child manage symptoms of mitochondrial disease (mito) at school.

Link to Paediatric palliative care Fact Sheet Page

Paediatric palliative care

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Palliative care provides comfort and support to your child and family.

Link to Advocating for your child at school  Fact Sheet Page

Advocating for your child at school

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A resource for children already enrolled in school. It provides advice and tips on how to navigate some of the challenges kids with mito can face at school.

Link to Travelling with equipment Fact Sheet Page

Travelling with equipment

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Considerations for travelling when you require to take equipment.

Link to Travel insurance Fact Sheet Page

Travel insurance

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Information about travel insurance when impacted by mitochondrial disease (mito).

Link to Travelling with medication Fact Sheet Page

Travelling with medication

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Information and tips to travel safely with your medicines and medical devices.

Link to Travelling with mito  Fact Sheet Page

Travelling with mito

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Travelling can be thrilling but also challenging for those with mitochondrial disease(mito). This information aims to assist in the planning processt o make the journey more enjoyable.

Information about My Health Record and what it means for mito patients and their carers.

Guidance on preparing for travel, types of transport, travelling with a child with mito and more. Refer also to Travelling with Equipment and Travelling with Medications.

Guidance on packing and preparing your medication before travel and more. Refer also to Travelling with Mito and Travelling with Equipment.

Guidance on travelling with a wheelchair or assistance animals. Refer also to Travelling with Mito and Travelling with Medication.

This fact sheet guides parents of children with mito through the first steps they may want to take after receiving a diagnosis and aims to help develop a plan for the future.

This fact sheet aims to help patients navigate through information about mito and the health system and to provide an overview of considerations for the future.

This fact sheet explains how mito can be inherited and the reproductive options that may be available to couples in order to prevent the inheritance of mito.

This fact sheet explains what travel insurance is, what you can claim, and how people with mito can apply.

This fact sheet is designed to help you assess the quality and accuracy of information you find online.

This fact sheet is designed to help you prepare for medical appointments with specialists.

This fact sheet provides information to help those living in rural and regional Australia access specialist care. It includes information on government support and other support services.

This fact sheet outlines the benefits of obtaining a genetic diagnosis of mitochondrial disease. It includes relevant case studies and is a useful document to provide to your GP and specialists.

Everyone should have the freedom to make informed decisions about their healthcare. This fact sheet discusses advocacy services which support decision making and help resolve issues with health, disability and other services. It also provides information about advance care planning and appointing a Power of Attorney.

This fact sheet provides information about medical identification jewellery and phone apps as well as personal emergency response services/personal alarm call systems.

This book, written by Christy Balcells, Executive Director of MitoAction helps adult patients, parents, family members and carers how to achieve the best quality of life possible.

Paediatric palliative care is provided to children who have a progressive, life-limiting illness. It is a holistic approach which supports the physical, emotional, social and spiritual needs of your child and your family.

Palliative care is care and support provided to people who have a progressive, life-limiting illness. It recognises your unique needs when you are reaching the end of your life, as well as the needs of your family and carers.

When it comes to posting your own genetic diagnosis or results on social media or any other means of public communication, you may not think twice about the impact of your decision.

A diagnosis of mito for you or a loved one can be very stressful and may leave you experiencing a rollercoaster of emotions. The stress of living with mito and learning to manage the multiple aspects of the condition can affect the mental wellbeing of everyone affected.