At Mito Foundation, we aim to create safe, respectful, and inclusive spaces where the mitochondrial disease (mito) community can connect, share, and support each other. Whether you're joining a digital event or attending in person, we ask that all participants follow the community guidelines outlined below.

  1. Respect each person's choice to participate or not.

Everyone is welcome to engage in whatever way feels comfortable for them. Listening is just as valuable as speaking.

  1. Listen without interrupting or judging

We value empathy, kindness, and openness. Please allow others to share their experiences without criticism.

  1. Confidentiality is essential

What is shared during the event should remain within the group. Please do not share anyone’s personal stories, names, medical details, or private conversations outside of this space. If there are any follow-up questions or someone needs extra support, the event host may pass these on to the Mito Foundation team or ask the team to get in touch directly.

  1. No medical advice

Please be careful when asking about people’s treatments or sharing your own experience. Sharing your personal experience can be valuable, but should not be given as advice. Every person with mito is unique and may respond differently. Please don’t give or request medical advice. Always speak with a health professional about treatment or care guidance.

  1. No defamatory, insulting, or discriminatory comments

Keep the space safe and inclusive. Do not discuss anything hurtful or degrading about individuals or groups — including people outside the event like health professionals or organisations.

  1. Stick to relevant topics

Discussions should relate to the Australian mito community. This helps keep the space meaningful for all participants.

  1. Care for yourself

You're welcome to take breaks or step away at any time if you need to.

  1. The host or speaker will guide the conversation

They are here to ensure the session runs smoothly and respectfully.

  1. Guideline breaches may result in removal

The host may remove anyone who doesn’t follow these guidelines to maintain a safe environment for all.

By participating in our events, you’re helping create a kind, empowering space for the mito community. Thank you for respecting these guidelines and contributing to a positive experience for everyone.

Tips for joining an online event

Zoom features such as chat, raise hand, reactions and captions are easiest to access when you join using the Zoom app on your computer or smartphone. Joining through a web browser can limit some features depending on your device and browser.

Before the event
During the event

Easy Read: How to use Zoom (external resource)

Easy Read: Online meeting checklist (external resource)

Contact us

Call Mito Foundation's Helpline for more information or assistance on

1300 977 180

Please note the Helpline is available Monday to Friday, excluding NSW public holidays.

Submit your Helpline request online

Immediate support

If you or someone you know needs emergency assistance, please call emergency services on

000

Mental health support

This page shares information and resources to help you find mental health support that works for you.

Access mental health support

Disclaimer: Resources provided by the Australian Mitochondrial Disease Foundation Limited (Mito Foundation), offers general information and is not a substitute for medical advice. It is essential to assess the suitability of the content for your individual circumstances and make decisions based on your medical condition. The information’s accuracy is subject to change, and we do not guarantee ongoing currency or availability. While efforts are made to ensure accuracy, Mito Foundation is not obligated to provide updated information. The copyright for this document and its content belongs to, or is licensed to, Mito Foundation, and reproduction without prior written consent is prohibited.

Author(s): Mito Foundation
Version: 1.4
Last reviewed: Tuesday 8 April 2025      Â