Mito Stories

John has LHON which caused him to go blind at the age of 47. His family have a history of LHON.

Aidan was placed on life support after his body failed to cope with a common cold. After two years, of symptoms, he was diagnosed with mito.

It took four years for Taylah’s family to receive her diagnosis of Leigh syndrome. Taylah suffers from dystonia, speech difficulties, and low energy.

Shelley had never heard of mitochondrial disease until 3 years ago - when her mother experienced a rapid decline in health.

Although she lacked hand-eye coordination and was not physically robust, there was no indication of medical problems for Judy until she was an adult.

Ruby was only a few days old when she began to suffer from ongoing seizures. She sadly passed away from mitochondrial disease complex IV.

Kara’s mother thought that Kara had a bad case of gastro – she never imagined it would be her daughter’s first MELAS stroke.

Jacinta was slow to reach her milestones. At eleven months, she had an operation and had to be resuscitated.

My name is Zahra, which means beautiful, bright, brilliant, and shining in Arabic. My papa and mama would often say, I was all this and much more. My life has been only about love and play, and this is my story.

Chloe was Jo and Allan's first child. Jo had a healthy pregnancy and uneventful birth. When Chloe was 6 weeks old they were referred to the Metabolic Clinic at the Women's and Children's Hospital in Adelaide.