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  • About Mito
      • About Mito – The following information will help you understand mito.
      • Understanding Mito – What is mitochondrial disease? Learn more about this rare disease.
      • Maybe it’s Mito – Information for individuals with suspected mitochondrial disease.
      • Genetics and Mito – Genetic changes can lead to conditions such as mito.
      • Mitochondrial Donation – An IVF technique with the potential to prevent mitochondrial disease in the next generation.
      • For Health Professionals – Information about mitochondrial disease for health professionals.
  • Managing Mito
      • Managing Mito – Resources to empower people to make informed choices and help navigate life with mito.
      • Find A Health Professional – Locate a health professional with experience in seeing people impacted by mito.
      • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
      • Personal Stories – Read inspirational stories of other people’s experiences with mito.
  • Find Support
      • Find Support – Reach out to us today.
      • Helpline – Contact the Helpline to talk to a Support Officer for general advice or assistance.
      • Events – Connect with others who have similar experiences.
      • Peer Support – Unique one-on-one support for individualised connections within the mito community.
      • Pathways Teleheath Nurse Program – Our Pathways Teleheath Nurse will work with you to develop a tailor-made care plan.
      • NDIS Support – Access the NDIS Navigation Service for resources, education and 1:1 guidance on the NDIS.
      • Grief & Loss Support – Grief can be a response to many situations when living with a chronic illness, visit this page for support resources and organisations.
  • Get Involved
    • Support Our Research
    • Mighty Hearts
    • Donate
    • Give Monthly
    • Fundraise
    • Leave a Gift in Your Will
    • The Bloody Long Walk
    • Mito Community Voice
    • Volunteer
    • Your Donations at Work
  • Research
    • Research Opportunities
    • Our Impact (Funded Grants)
    • Participate in Research
    • Leigh Syndrome International Consortium
  • Mito Registry
      • Mito Registry – Join the Mito Registry for access to new treatments, clinical trials and studies.
  • Events
    • Events
    • Mito Community Summit
    • Mito Information Days
    • Mito Connect Calls
    • Mito Meet-ups
    • World Mitochondrial Disease Week
    • Munch For Mito
  • About
      • Purpose and Vision – Learn about the foundation’s mission to enrich the lives of people impacted by mito.
      • Driving Change – Learn about the foundation’s advocacy and policy work.
      • Our Impact – Learn about research projects the foundation has funded.
      • Your Donations at Work – Learn how your donations have helped people impacted by mito.
      • Our People – Learn more about the individuals involved with the foundation, from mito community representatives to public ambassadors.
        • Board of Directors
        • Team
        • Mito Community
        • Scientific and Medical Advisory Panel
        • Mito Community Advisory Panel
        • Patrons
        • Ambassadors & Supporters
      • Contact – Find out the various ways to get in touch with the foundation.
      • Affiliations – Learn about organisations that work with the foundation.
      • Annual Reviews and Audited Financial Reports – Access the annual review for a snapshot of the work done to provide support and hope to the mito community.
      • Opportunities – Find out about the latest opportunities to work or volunteer with the foundation.

Australian Media Coverage

Experimental Procedure Could Help More Families have Healthy Babies
Time Magazine, January 2019
Once rare mitochondrial disease striking generations of families
The Sydney Morning Herald, October 2017
Call for change to human cloning law to prevent genetic disorder
The Age, September 2017
My Sister Woke up Unable to Walk or See. I Can’t Risk That for My Child
News.com.au, January 2017
The Push to Make Three Parent Baby IVF Legal in Australia
Gizmodo, December 2016
“A ‘three-person baby’ might be my only hope for having a child.”
MamaMia, November 2016
What is Mitochondrial Donation?
MamaMia, October 2015

Links and Resources

  • Mitochondrial Donation Homepage
  • The Science Behind Mitochondrial Donation
  • Resources
  • Australian Media Coverage
  • UK Licences
  • How You Can Help
  • Mito Foundation’s Position Statement

About Us

Mito Foundation supports people affected by mitochondrial disease (mito), funds essential research into the prevention, diagnosis, treatment and cures of mitochondrial disorders, and increases awareness and education about this devastating disease.

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The Mito Foundation would like to acknowledge the traditional custodians of the land on which we work. We pay respect to their cultures and to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.

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