You may have read in the mitoHOPE Program newsletter that the estimated timeline to begin its clinical trial as part of Australia's mitochondrial donation pilot program has been revised. We know this news will be disappointing for many people and families impacted by mitochondrial disease.

Based on revised estimates, Australian families may be able to start the process of mitochondrial donation towards the end of 2027, 12 months later than previously anticipated.

For those waiting and hoping to access mitochondrial donation, we acknowledge this delay is not just a change in timing. It may affect deeply personal decisions about starting or growing a family. For some, it comes after years of advocacy alongside Mito Foundation to change legislation and make mitochondrial donation possible in Australia. We recognise the uncertainty this delay may cause and want the community to know we share in your frustration and disappointment.

Mito Foundation has raised with the mitoHOPE Program the importance of providing clear, and timely information when changes like this occur. To help amplify communication of this revised timeline, we are contacting the families that we know are waiting so they have accurate information and access to support while they consider their next steps.