The National Disability Insurance Scheme (NDIS) can seem overwhelming to many people. Feedback from the mito community has shown gaps in NDIS support, including:

  • Understanding how the NDIS can help someone impacted by mitochondrial disease (mito)
  • Help to navigate NDIS applications and planning processes
  • Lack of knowledge about mito from NDIS service providers

To address this, Mito Foundation developed the NDIS Navigation Service.

What Is The NDIS Navigation Service?

This Mito Foundation NDIS Navigation Service aims to help people diagnosed with mito maximise their success in seeking support under the NDIS. Led by Ruth Yuthok (NDIS Navigator), the aim is to improve confidence and knowledge to access the disability support needed to maintain quality of life and equitable participation. This will be delivered through education, resources, and one-on-one guidance.

Please note that the service is not a substitute for National Disability Insurance Agency (NDIA) funded support.

What Is The NDIS?

The NDIS, is run by the National Disability Insurance Agency, also known as the NDIA.
The NDIS gives financial support to eligible Australians with a permanent and significant disability. Each person on the NDIS has an individual plan that details their goals and approved funding.
If the NDIS is new to you, or a bit hard to wrap your head around, start with these resources. They aim to paint the overall picture and outline the NDIS journey.

How To Navigate The NDIS

How do I access and then apply to the NDIS?

To access the NDIS, you need to meet the eligibility criteria, fill in an ‘Access Request Form’, and submit it to the National Disability Insurance Agency (NDIA) with some supporting information.



This section explains the process and provides documents to empower you with the knowledge to decide whether to apply; and if so, how. We highly recommend you download our Accessing The NDIS Checklist which will guide you through this process.

Here are a few resources on how to access the NDIS:

Applying to the NDIS

If you think you might be eligible to apply to become a participant of the NDIS, please follow the Accessing The NDIS Checklist as it provides a step by step guide to apply. Applying for the NDIS can be difficult, if you need assistance, please contact the Mito Foundation Helpline or call 1300 977 180.

These resources will help you apply for the NDIS:

I was approved/not approved for the NDIS
Using your NDIS Plan

Interested In Improving NDIS Support?

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Additional Resources

You might have some other questions that haven’t been answers yet? You might find them covered in this section, but if not, reach out and let us know.


Other Mito Foundation Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Patient Pathways Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

Attend a support event in your local area or online, including Information Days, Mito Meet-ups and Mito Connect Calls.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.