The National Disability Insurance Scheme (NDIS) can seem overwhelming to many people. Feedback from the mito community has shown gaps in NDIS support, including:

  • Understanding how the NDIS can help someone impacted by mitochondrial disease (mito)
  • Help to navigate NDIS applications and planning processes
  • Lack of knowledge about mito from NDIS service providers

To address this, Mito Foundation developed the NDIS Navigation Service.

What is the NDIS Navigation Service?

This Mito Foundation NDIS Navigation Service aims to help people diagnosed with mito maximise their success in seeking support under the NDIS. Led by Mito Foundation's NDIS Navigator, the aim is to improve knowledge and confidence to access the disability support needed to maintain quality of life and equitable participation. This will be delivered through education, resources and one-on-one guidance.

The NDIS recently underwent a review. The final report has now been published. Find out what this review might mean for the mito community?

Other Mito Foundation Services

Call the Mito Helpline to talk to a support officer for general advice, assistance in seeking a referral or more information on Mito Foundation support services.

Our dedicated Pathways Telehealth Nurse will work with you to develop a tailor-made care plan to provide support, education and connection with other services.

Attend a support event in your local area or online, including Mito Information Days, Mito Meet-ups and Mito Connect Calls.

The Mito Registry collects important information about Australians with confirmed or suspected mito for the purpose of research into treatments and cures.