Beginning your journey with mitochondrial disease (mito) can be difficult, especially if you are unfamiliar with the disease. Here you will find links to events to increase your understanding of mito, and helpful videos and fact sheets to help manage your day-to-day life.
Managing Mito, clinical practice and mito experiencesVideo
At a Digital Mito Information Day, Janet Long and Stephanie Best presented work done around the management of mito from the perspective of clinicians and people with mito. This included work on how apps, telehealth and other virtual resources can assist with problems unique to living with a rare disorder
Driving Change for the Mito CommunityVideo
At a Digital Mito Information Day, Clare Stuart (Mito Foundation Policy & Advocacy Manager) spoke about Mito Foundation’s policy and advocacy work, including mitochondrial donation, improving access to genetic technologies and working to improve supports available through NDIS and other government programs.
Patient Pathways Program IntroductionVideo
Michele Hemmings (Patient Pathways Telehealth Nurse) introduces the Patient Pathways Program and shares why members of the mito community can benefit from accessing this service. To learn more, please call our Helpline on 1300 977 180 or email email@example.com