This page contains news items from 2018 and 2017. For older new items, please visit the news archive.
27 July 2018 Read our media release about a pioneering project we are co-funding with The Lily Foundation.
25 July 2018 Happy 40 birthday Louise Brown! Louise’s birth was ground breaking and provided hope to millions of couples. We hope in the future, we can look back on the first baby born using mitochondrial donation, in a similar way.
28 June 2018 Senate Committee recommends pathway to legislative change so Australian babies don’t suffer with mitochondrial disease.
27 June 2018 The Mito Foundation and The Lily Foundation have partnered to co-fund research into treatment for recessive RRM2B related mitochondrial disease.
21 June 2018 An the Mito Foundation Booster Grant will support an exciting research project applying ‘state of the art’ approaches to genomic testing.
15 May 2018 Why you should join the Mito Registry, if you have been diagnosed with or are suspected to have mitochondrial disease (mito).
10 May 2018 Trek the Great Wall of China to cure mitochondrial disease (mito) – register now!
2 May 2018 Register now for Australia’s most important conference into mitochondrial research!
30 Article 2018 the Mito Foundation has launched Mito 4 Kids, a school education program about mitochondrial disease (mito) for children in years K-6.
26 April 2018 the Mito Foundation has approved funding for four new exciting projects into areas such as genetic testing, standards of care, whole genome sequencing and Sengers syndrome.
18 April 2018 The Mito Foundation is working with the International Centre for Community-Driven Research to understand the experience of mito patients and what they want from future treatment, care and support.
16 April 2018 Curtin University (WA), the University of Sydney (NSW) and the Sydney Children’s Hospital at Westmead (NSW) invite the mito community to participate in research studies.
April 2018 Read the Mito Foundation’s position on the use of genetic information by life insurers in Australia, in light of the recent Parliamentary Inquiry into the life insurance industry (March 2018).
28 February 2018 The Mito Foundation thanks Dave Cleary for representing WA on the Mito Foundation Board since 2014 and warmly welcomes new representative Fiona Elmer and alternate Dan Loden.
16 February 2018 Stealth BioTherapeutics’ interventional study on Primary Mitochondrial Myopathy (PMM) treatment will no longer take place in Australia.
25 January 2018 The WA Department of Health has invited the Mito Foundation to provide a submission into its independent review of the Western Australian Human Reproductive Technology Act 1991 (HRT Act).
The Mito Foundation Ambassador Pat Cummins will represent Australia in the first test of the Ashes.
4 August 2017 Mito Warrior is an outer space adventure game develop by Stealth BT to teach people about mitochondria and mitochondrial disease.
With great sadness, the Mito Foundation learnt the news of the passing of Rose Lingard on Friday 9 June 2017.
Read the Mito Foundation’s position statement and summary of the Federal Budget, and how it will impact the mito community.
On 2 April NSW Premier Gladys Berejiklian and Minister for Health Brad Hazzard pledged two million dollars of funding to establish Big Bear Cottage – a hospice for 18 to 30 year olds.
10 April 2017 The Mito Foundation is pleased to announce a new research opportunity for patients with suspected mitochondrial disease. The project aims to provide patients with a genetic diagnosis, and determine the most effective way to diagnose mito.
3 April 2017 A number of international patient forums are available to the Australian mito community in 2017.
27 February 2017 The Mito Foundation is seeking feedback via an online survey, from people with a personal connection to mito to enable us to improve and expand on our services. The survey will take approximately 20 minutes, and your responses can remain anonymous. Click here to take the survey.
19 February 2017 On 19 February, The Essendon Royals Soccer Club hosted a party in celebration of Luca’s second birthday. Luca was diagnosed with mitochondrial disease when he was 10 months old.
3 January 2017 The Mito Foundation welcomes the introduction of the Australian Charities and Not-for-profits Commission (ACNC) ‘Tick of Charity Registration’.