Care Standards For Mito – Update
The Australian Patient Care Standards are an important resource to guide health professionals to improve the care they provide for people impacted by mitchondrial disease (mito). The standards have been adapted for Australia based on the standards published by the Mitochondrial Medicine Society. Mito Foundation will work with mito specialists to raise awareness of the standards and use these as the basis to improve health care for the mito community.
Mito Foundation supports Medicare funding for reproductive genetic carrier screening
Mito Foundation supports Medicare funding for reproductive genetic carrier screening. If funded by Medicare, this reproductive genetic carrier screening will allow more Australian families to know if their future children…
Study recommends improvements to mito specialist health services
Study’s recommendations for improvements to mito specialist health services Mitochondrial disease (mito) specialist services play a key role in diagnosing mito and formulating management plans for people impacted by mito….
Maeve’s Law Has Passed!
HOPE FOR THOUSANDS AS MAEVE’S LAW PASSED In a historic moment in the Australian Parliament on Wednesday 30 March, Federal Senators have voted in favour of the Mitochondrial Donation Law…
Researcher Spotlight: Dr Isabel Lopez Sanchez
Research into mitochondrial disease (mito) is a core pillar of Mito Foundation’s work. Only through research will we one day find cures for mito and advancements to improve the quality…
Mito Community Survey: Share your experiences today
The Mito Community Survey is now open. Please take a moment to share your experiences of mito and how the foundation can improve its offerings to the community.
Maeve’s Law sits with the Senate
The year has started with exciting progress towards legalising mitochondrial donation in Australia to offer eligible families the option to have children without passing on mito. Following a majority vote in the House of Representatives in December 2021, Senators debated the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 during the February sittings of parliament. Debate on the proposed amendments to the Bill, and the conscience vote on the Bill itself, will carry over to March. A majority of votes is required in the Senate for the Bill to be passed.
Securing Medicare Funding For Genomic Testing
Mito Foundation is pleased to share the submission we made to the Medicare Services Advisory Committee regarding the importance of Medicare funding for genomic testing to help diagnose mitochondrial disease (mito). Thank you to the generous mito community members who shared their stories and perspectives with us.
Fast tracking a novel therapy to prevent mito-related blindness
Mitochondria are the power houses of the cell providing the body with over 90% of the energy it needs to sustain life. In a person with mitochondrial disease (mito), the mitochondria do not work properly due to defects in genes controlling mitochondrial function. Impaired mitochondrial energy supply causes multiple organs to malfunction or fail.
Fundraiser Appreciation: Wilay Designs
Wilay Designs, made up of Jazz and Kristal Matthews, who are aboriginal artists and sisters living and working on Ngarrindjeri Country/South Australia. In 2019, they decided to start to share…