News

Researcher Spotlight: Dr Daniella Hock

Research into mitochondrial disease (mito) is a core pillar of Mito Foundation’s work. Only through research will we one day find cures for mito and advancements to improve the quality…

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World Mitochondrial Disease Week Wrap-Up

World Mitochondrial Disease Week took place on 18-24 September. And it’s helped unite the global mito community thanks to you! Here are some of the highlights: Light Up for Mito…

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The Mito Foundation Awards 2022

The Mito Foundation is fortunate to work with incredible individuals who go the extra mile to support people with mito. Each year we recognise some of those whose exceptional efforts…

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2022 Mito Community Survey Results

Thank you to the 275 respondents who completed the 2022 Mito Community Survey. Your input drives Mito Foundation’s work towards better outcomes for the mito community.

View the first in our series of deep-dive reports into the 2022 Mito Community Survey below.

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News

Welcome our new Chair and Deputy Chair of the SMAP

After two years as Chair of the foundation’s Scientific and Medical Advisory Panel (SMAP), Professor Carolyn Sue‘s term has concluded. We are pleased to announce the appointment of Professor Aleksandra…

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Research funded to reverse the effects of Leber Hereditary Optic Neuropathy (LHON)

In May and June, our supporters rallied to fund critical research that has the potential to restore sight in people with Leber Hereditary Optic Neuropathy (LHON) – a type of…

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News

Care Standards For Mito – Update

The Australian Patient Care Standards are an important resource to guide health professionals to improve the care they provide for people impacted by mitchondrial disease (mito). The standards have been adapted for Australia based on the standards published by the Mitochondrial Medicine Society. Mito Foundation will work with mito specialists to raise awareness of the standards and use these as the basis to improve health care for the mito community.

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Mito Foundation supports Medicare funding for reproductive genetic carrier screening

If funded by Medicare, this reproductive genetic carrier screening will allow more Australian families to know if their future children are at risk of developing a severe childhood form of…

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Study recommends improvements to mito specialist health services

Study’s recommendations for improvements to mito specialist health services Mitochondrial disease (mito) specialist services play a key role in diagnosing mito and formulating management plans for people impacted by mito….

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News

Maeve’s Law Has Passed!

HOPE FOR THOUSANDS AS MAEVE’S LAW PASSED In a historic moment in the Australian Parliament on Wednesday 30 March, Federal Senators have voted in favour of the Mitochondrial Donation Law…

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