Securing Medicare Funding For Genomic Testing
Mito Foundation is pleased to share the submission we made to the Medicare Services Advisory Committee regarding the importance of Medicare funding for genomic testing to help diagnose mitochondrial disease…
Fast tracking a novel therapy to prevent mito-related blindness
Mitochondria are the power houses of the cell providing the body with over 90% of the energy it needs to sustain life. In a person with mitochondrial disease (mito), the mitochondria do not work properly due to defects in genes controlling mitochondrial function. Impaired mitochondrial energy supply causes multiple organs to malfunction or fail.
Fundraiser Appreciation: Wilay Designs
Wilay Designs, made up of Jazz and Kristal Matthews, who are aboriginal artists and sisters living and working on Ngarrindjeri Country/South Australia. In 2019, they decided to start to share…
Safe Medicine List
Mito Foundation acknowledges there are multiple sources of information published about medication that is safe or to be avoided by individuals with mitochondrial disease (mito). In 2020, International Mito Patients…
STRIDE Study: Promising new treatment for mito myopathy
Patients with mitochondrial disease commonly experience exercise intolerance and fatigue. There are limited therapeutic options for these problems and research efforts are focused on developing treatments. The STRIDE study is…
Fundraiser Appreciation: Eview Group
Back in May, the Eview Group set out to tackle an exceptional feat; to walk 50kms (that’s 15kms more than The Bloody Long Walk) to raise awareness and funding for…
New National Mitochondrial Diagnostic Network
A team of mitochondrial researchers led by Professor David Thorburn has secured $3M in funding to establish a national network to improve mito diagnosis. The funding is part of the…
Patient Pathways Program – Sian’s Story
Last November, Sian Cave reached out to the Mito Foundation Patient Pathways Program after receiving a confirmed diagnosis of MELAS (Mitochondrial Encephalopathy, Lactic Acidosis, and Stroke-like episodes). Michele, the foundation’s…
Thank you Glen Watts
Glen Watts, thank you for your commitment. After six years of valuable contribution, Glen Watts has resigned from The Mito Foundation Board of Directors. When Glen first joined in…
Mito Donation: Hope for Families with Mito
This week marked a very important milestone towards legalising mitochondrial donation. On Wednesday 24 March, Health Minister Greg Hunt introduced the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 to Parliament.