18 April 2018

Participate in the First Mito Study of its Kind

The Mito Foundation is working with the International Centre for Community-Driven Research to understand the experience of people diagnosed with mitochondrial disease (mito) and what they want to see from future treatment, care and support. This PEEK (Patient Experience Expectations Knowledge) study into mito will be the first of its kind!

Patients as well as parents and carers of children with mito are invited to complete an online questionnaire, which will take approximately 15 minutes, and a structured telephone interview, which will take approximately 30 to 45 minutes. This interview will allow you to share your experiences in order to benefit others.

Once data collection is complete, a report that will look something like this will be developed. We can then use that for years to come to advocate on your behalf for the treatment, services and care that are important to you.

Click here to find out more.

Register now and have your voice heard.