Patient Pathways Telehealth Case Management Nurse – Update

The Mito Foundation is committed to employing a Patient Pathways Telehealth Case Management Nurse to meet the mito community’s ever-growing need for information and support. With funding secured from the Centre For Community-Driven Research (CCDR), the foundation has already begun the recruitment process.

What is a Patient Pathways Telehealth Case Management Nurse?

The Patient Pathways Telehealth Case Management Nurse will provide centralised and coordinated care to the mito community and aid in navigating the Australian healthcare system.

The recent Patient Experience, Expectations and Knowledge (PEEK) study illustrated that the experiences of patients with mitochondrial disease (mito) trying to navigate a complex and fractured healthcare system can be negative. Many reported feelings of isolation and a lack of support.

To address this, the nurse will provide case management support to the community in the following areas:

  • Assistance with navigating the healthcare system to access all the relevant services that are available
  • Patient empowerment through education and information provision
  • Patient ability and confidence to proactively manage their condition or disease
  • Social and emotional support for patients and their families
  • Support of patient care with external healthcare organisations and facilities
  • Support for ongoing patient care with families and carers following hospital admission, discharge, and accident and/or emergency visits

It is important to note that the nurse will not provide treatment advice. The main objective of this role is to develop tailored care plans, provide practical and emotional support, education and connection with existing services.

The service is accessible to all mito patients and their families, regardless of location, and can be provided via phone, email or Zoom meetings.

If you are interested in this opportunity, please click here to see the job advertisement and here for the role description. For all other enquiries please contact Nellorie Iceton on or (02) 8033 4113.