The Mito Foundation was founded as a not for profit organisation in 2009 by Doug and Margie Lingard, their friends, and experts in the field of mitochondrial disease (mito). Doug and Margie tragically lost their son to mito, and their daughter, Rose, passed away from mito in 2017.

The organisation’s passionate team is based in Sydney and is supported by a dedicated band of volunteers across the country.

Our Purpose

To end the suffering from mitochondrial disease.

Our Vision

To be the catalyst for energy, hope and cures for every Australian impacted by mitochondrial disease.

Our Values

Excellence: We strive to be the best, operating with professionalism, impact focus, accountability and transparency to deliver the best outcomes.

Commitment: We drive towards our goals, unwavering in our dedication and urgency to make a difference for those affected by mito.

Compassion: We show support for everyone impacted by mito, demonstrating empathy, genuine care and kindness.

Collaboration: We work together for the greater good, sharing information and partnering openly, internally and externally. 

Gratitude: We are accountable for the support we receive at all levels by appropriately acknowledging and expressing gratitude for this support. 

Strategic Pillars


Improve the experience for mito patients and families by offering a range of Mito Foundation and community generated activities that result in the mito community feeling cared for, heard, supported and empowered.


Drive research into mito by identifying and funding strategic research initiatives that improve diagnosis and treatment and translate into preventions, treatments and cures.


Transform outcomes for mito patients and families by advocating to and educating appropriate stakeholders that achieves equitable access to high quality diagnosis, treatment and support.


Strengthen our organisation through excellent governance, financial security, capacity and capability.