The Mitochondrial Disease Patient Registry (Mito Registry) is a computerised system that will contain limited information about people suffering from mitochondrial disease (mito). Registering for the Mito Registry will ensure patients have the earliest possible opportunity to enter any relevant study or clinical trial.
There are more clinical trials and studies involving rare diseases looking for participants each day. The Mito Registry will enable you to be alerted of studies and trials relevant to your particular type of mito as soon as they call for patients. When researchers or pharmaceutical companies approach us with details of a new study or trial, we will contact those of you that meet the selection criteria. If you choose to be involved, we will pass on the details of the researchers for you to contact. We will never pass on your information to a third party without your permission.
This form asks about your diagnosis. Click here for information about clinical, biochemical and genetic diagnoses.
If you are unsure whether or not you are registered, or have any problems during the process, please call the Mito Foundation office on (02) 8033 4113 or email firstname.lastname@example.org
The Mito Registry is one way to help fast track finding a cure for mito!