We've put together a collection of helpful resources to make it easier for you to understand and manage mitochondrial disease (mito). Here, you'll find useful information on many different topics through information sheets, videos, expert talks, and other trusted resources. You can search for information on a specific topic or explore resources by category.

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Link to First steps after diagnosis Webpage

First steps after diagnosis

Webpage

Mitochondrial disease (mito) is complicated, here we have outlined the first steps following a diagnosis of mito.

Link to Understanding mito Webpage

Understanding mito

Webpage

Within this resource, you’ll find an explanation of mitochondrial disease including symptoms, who it impacts, and the complications with diagnosis and treatment options.

Link to Types of mitochondrial disease (mito) Webpage

Types of mitochondrial disease (mito)

Webpage

There are many different types of mitochondrial disease (mito), and each one can affect people in different ways. This page has information sheets to help you learn more about the different types of mito. You can search by name, the gene involved, or a specific genetic change. Use the search bar or explore the list to find the information you need.

Link to Genetics and mito Fact Sheet Page

Genetics and mito

Fact Sheet Page

All your physical features are controlled by your genes, which you inherited from your parents. Genetic changes can lead to diseases such as mitochondrial disease.

Link to Important information<br><noscript><img decoding=

Important information
about medicines

Fact Sheet Page

People with mito can react differently to medications. International Mito Patients (IMP) and LHON Collective provide lists of medicines that are safe, should be used with caution, or avoided.

Link to MitoHub Webpage

MitoHub

Webpage

Access services and information for people and families impacted by mitochondrial disease (mito).

Link to Genetic testing and mito Fact Sheet Page

Genetic testing and mito

Fact Sheet Page

Information about genetic testing and mitochondrial disease (mito).

Link to Understanding your diagnosis Webpage

Understanding your diagnosis

Webpage

Mitochondrial disease (mito) can be diagnosed in various ways. Knowing your diagnosis helps you manage symptoms by finding the right information for you. Understanding your diagnosis is important.

Link to Easy Read: Things to do when you find out you have mito Fact Sheet

Easy Read: Things to do when you find out you have mito

Fact Sheet

This information is for people who find out they have mitochondrial disease.

Link to Genetic counselling and mito Fact Sheet Page

Genetic counselling and mito

Fact Sheet Page

Genetic counselling provides information about genetic conditions like mito, such as, how they are inherited and what it means for you.

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Disclaimer: Resources provided by the Australian Mitochondrial Disease Foundation Limited (Mito Foundation), offers general information and is not a substitute for medical advice. It is essential to assess the suitability of the content for your individual circumstances and make decisions based on your medical condition. The information's accuracy is subject to change, and we do not guarantee ongoing currency or availability. While efforts are made to ensure accuracy, Mito Foundation is not obligated to provide updated information. The copyright for this document and its content belongs to, or is licensed to, Mito Foundation, and reproduction without prior written consent is prohibited.