A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
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Link to Mitochondrial Disease Information Fact Sheet

Mitochondrial Disease Information

Fact Sheet

Within this fact sheet, you’ll find an explanation of mitochondrial disease including symptoms, who it affects, and the complications with diagnosis and treatment options.

Link to The Importance of Quality of Life Video

The Importance of Quality of Life

Video
Shelley Beverley, Registered Psychologist and Mito Community Advisory Panel (MCAP) member, presented the importance of wellbeing and maintaining a quality of life while living with mitochondrial disease (mito).
Link to Genetic Diagnosis of Mitochondrial Disease Fact Sheet

Genetic Diagnosis of Mitochondrial Disease

Fact Sheet

This fact sheet outlines the benefits of obtaining a genetic diagnosis of mitochondrial disease. It includes relevant case studies and is a useful document to provide to your GP and specialists.

Link to Covid-19 Webinar Video

Covid-19 Webinar

Video

A webinar about Covid-19 as it relates to patients with Mitochondrial Disease. We answer some of the most common questions asked by members of our community.

Link to How to Ask For Support  Video

How to Ask For Support

Video

Shelley Beverley (MCAP member and psychologist) provides guidance for the important conversation on mental health and how to get the support you need.

Link to The Emotional Challenges of Physical Symptoms Video

The Emotional Challenges of Physical Symptoms

Video
Shelley Beverley (mito community member and registered Psychologist) walkthrough the emotional toll of mito from a professional and personal perspective. Please clickthrough to download the PDF presentation.
Link to Mitochondria from Basic Biology to Mechanism of Mitochondria Video

Mitochondria from Basic Biology to Mechanism of Mitochondria

Video

At a 2020 Mito Information Day, Dr Diana Stojanovski breaks down the biology of mito to explain what happens when someone is diagnosed with the illness.

Link to Palliative Care for Mito Kids Fact Sheet

Palliative Care for Mito Kids

Fact Sheet

This fact sheet helps you navigate the considerations of palliative care for your child and how to access the service.

Link to Mindfulness to Manage Your Health and Life Changes Video

Mindfulness to Manage Your Health and Life Changes

Video
Carolyn Uhlmann (Psychologist), provides great tips to manage the health and wellbeing changes that come with mito through practical mindfulness techniques.
Link to The NDIS Journey Video

The NDIS Journey

Video

Preeti Raghwani (mito community member and NDIS Support Coordinator) provides an introduction to navigating the National Disability Insurance Scheme (NDIS).