A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
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Link to Genetic testing and mito Fact Sheet Page

Genetic testing and mito

Fact Sheet Page

Information about genetic testing and mitochondrial disease (mito).

Link to Options for building your family Fact Sheet Page

Options for building your family

Fact Sheet Page

If you are affected by mitochondrial disease (mito), there may be ways to lower the risk of passing mito on to your future children. When you are thinking about having children, it is important to be aware of all the options you have.

Link to Genetic counselling and mito Fact Sheet Page

Genetic counselling and mito

Fact Sheet Page

Genetic counselling provides information about genetic conditions like mito, such as, how they are inherited and what it means for you.

Link to Rural and Remote Health Care Video

Rural and Remote Health Care

Video

This digital Rural and Remote Mito Information Day focused on the needs of those with mitochondrial disease (mito) living outside of the capital cities.

Link to Mitochondrial Disease Information Fact Sheet

Mitochondrial Disease Information

Fact Sheet

Within this fact sheet, you’ll find an explanation of mitochondrial disease including symptoms, who it affects, and the complications with diagnosis and treatment options.

Link to Mito Connect Call: Finding Quality NDIS Services & Supports Video

Mito Connect Call: Finding Quality NDIS Services & Supports

Video

In this Mito Connect Call, Ruth Yuthok (Mito Foundation’s NDIS Navigator) discusses finding quality NDIS services and supports.

Link to Making Mito Mighty: Finding treatments for mito Video

Making Mito Mighty: Finding treatments for mito

Video

At a Melbourne Mito Information Day, Cameron McKnight discussed how he has used human stem cell models of mitochondrial disease to study promising drug treatments for heart muscle cells.

Link to Tips on how to strengthen your case for NDIS support Video

Tips on how to strengthen your case for NDIS support

Video

At a Perth Mito Information Day, Tammy Whait covered ways to strengthen your case for NDIS support when applying for the first time or approaching a plan review.

Link to Physiotherapy options for Children living with Mito Video

Physiotherapy options for Children living with Mito

Video

At a Perth Mito Information Day, Amy Piesse explored best practice physiotherapy options for children living with mito.

Link to Diagnostics changes from genomics and new technology Video

Diagnostics changes from genomics and new technology

Video

At a Perth Mito Information Day, Prof. David Thorburn provided an overview of the causes of mitochondrial disease and how the diagnostic process has been changed by genomics and other new technologies.