A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
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Link to Palliative Care - Supporting the Child and Family Video

Palliative Care - Supporting the Child and Family

Video

At a Digital Paediatric Mito Information Day, Dr Martha Mherekumombe shared an overview of paediatric palliative care.

Link to Diet and Exercise for Children with Mito Video

Diet and Exercise for Children with Mito

Video

At a Digital Paediatric Mito Information Day, Dr Maina Kava spoke about nutritional and exercise therapies that specialists use to improve the quality of life and health outcomes for children with mito.

Link to Demystifying Palliative Care – it’s more Video

Demystifying Palliative Care – it’s more

Video
Carolyn Vaughan (Public Health Palliative Care Unit, La Trobe University) led a discussion to demystify Palliative Care to improve our understanding of the many benefits of the service.
Link to Update on Supplements and Treatments for Children with Mito Video

Update on Supplements and Treatments for Children with Mito

Video

At a Digital Paediatric Mito Information Day, Dr Shanti Balasubramaniam provided an overview of the therapeutic approaches used to treat patients with primary mitochondrial disorders.

Link to Paediatric palliative care Fact Sheet Page

Paediatric palliative care

Fact Sheet Page

Palliative care provides comfort and support to your child and family.

Link to The Importance of Quality of Life Video

The Importance of Quality of Life

Video
Shelley Beverley, Registered Psychologist and Mito Community Advisory Panel (MCAP) member, presented the importance of wellbeing and maintaining a quality of life while living with mitochondrial disease (mito).
Link to Genetic Diagnosis of Mitochondrial Disease Fact Sheet

Genetic Diagnosis of Mitochondrial Disease

Fact Sheet

This fact sheet outlines the benefits of obtaining a genetic diagnosis of mitochondrial disease. It includes relevant case studies and is a useful document to provide to your GP and specialists.

Link to Covid-19 Webinar Video

Covid-19 Webinar

Video

A webinar about Covid-19 as it relates to patients with Mitochondrial Disease. We answer some of the most common questions asked by members of our community.

Link to How to Ask For Support  Video

How to Ask For Support

Video

Shelley Beverley (MCAP member and psychologist) provides guidance for the important conversation on mental health and how to get the support you need.

Link to The Emotional Challenges of Physical Symptoms Video

The Emotional Challenges of Physical Symptoms

Video
Shelley Beverley (mito community member and registered Psychologist) walkthrough the emotional toll of mito from a professional and personal perspective. Please clickthrough to download the PDF presentation.