A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.

  • Search for Resources

  • Type of Resource

  • Category

Link to Covid-19 Webinar Video

Covid-19 Webinar

Video

A webinar about Covid-19 as it relates to patients with Mitochondrial Disease. We answer some of the most common questions asked by members of our community.

Link to How to Ask For Support Video

How to Ask For Support

Video

Shelley Beverley (MCAP member and psychologist) provides guidance for the important conversation on mental health and how to get the support you need.

Link to The Emotional Challenges of Physical Symptoms Video

The Emotional Challenges of Physical Symptoms

Video
Shelley Beverley (mito community member and registered Psychologist) walkthrough the emotional toll of mito from a professional and personal perspective. Please clickthrough to download the PDF presentation.
Link to Mitochondria from Basic Biology to Mechanism of Mitochondria Video

Mitochondria from Basic Biology to Mechanism of Mitochondria

Video

At a 2020 Mito Information Day, Dr Diana Stojanovski breaks down the biology of mito to explain what happens when someone is diagnosed with the illness.

Link to Palliative Care for Mito Kids Fact Sheet

Palliative Care for Mito Kids

Fact Sheet

This fact sheet helps you navigate the considerations of palliative care for your child and how to access the service.

Link to Mindfulness to Manage Your Health and Life Changes Video

Mindfulness to Manage Your Health and Life Changes

Video
Carolyn Uhlmann (Psychologist), provides great tips to manage the health and wellbeing changes that come with mito through practical mindfulness techniques.
Link to The NDIS Journey Video

The NDIS Journey

Video

Preeti Raghwani (mito community member and NDIS Support Coordinator) provides an introduction to navigating the National Disability Insurance Scheme (NDIS).

Link to Reproductive Options Fact Sheet

Reproductive Options

Fact Sheet

Preconception genetic counselling is recommended to couples who are planning to start a family. This fact sheet walks you through the process and available options.

Link to First Steps with Kids Fact Sheet

First Steps with Kids

Fact Sheet

This fact sheet can help to guide you in some of the first steps you may want to take after receiving a mito diagnosis for your child and aims to help you develop a plan for the future.

Link to Preparing for Specialist Medical Appointments Fact Sheet

Preparing for Specialist Medical Appointments

Fact Sheet

This fact sheet provides helps and tips to gain the most benefit from your appointments. It is important to come prepared.

Load More