A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.

  • Search for Resources

  • Type of Resource

  • Category

Link to First Steps with Kids Fact Sheet

First Steps with Kids

Fact Sheet

This fact sheet can help to guide you in some of the first steps you may want to take after receiving a mito diagnosis for your child and aims to help you develop a plan for the future.

Link to Preparing for Specialist Medical Appointments Fact Sheet

Preparing for Specialist Medical Appointments

Fact Sheet

This fact sheet provides helps and tips to gain the most benefit from your appointments. It is important to come prepared.

Link to Sample Letter to Your Child's Teacher Webpage

Sample Letter to Your Child's Teacher

Webpage

This template letter removes the stress of knowing how to communicate your child’s condition with their school. Use it to help your child receive the support they need at school.

Link to Considerations for Mito Patients Undergoing Surgery Fact Sheet

Considerations for Mito Patients Undergoing Surgery

Fact Sheet

This fact sheet explores what you need to consider if you are about to undergo surgery. Anaesthetic can cause complications so it’s best to consult a mitochondrial disease specialist.

Link to The Psychological Impacts of Mito Fact Sheet

The Psychological Impacts of Mito

Fact Sheet

A diagnosis of mito for you or a loved one can be very stressful and may leave you experiencing a rollercoaster of emotions. This fact sheets provides assistance to navigate these emotions.

Link to Mitochondrial disease update: testing and treating Video

Mitochondrial disease update: testing and treating

Video

In this video, Dr Matthew Lynch (Senior Neurology Fellow) provides an update on the developments in mito treatment and testing.

Link to Pathways Telehealth Nurse Program Introduction Video

Pathways Telehealth Nurse Program Introduction

Video

Michele Hemmings (Pathways Telehealth Nurse) introduces the Pathways Telehealth Nurse Program and shares why members of the mito community can benefit from accessing this service. To learn more, please call our Helpline on 1300 977 180 or email helpline@mito.org.au

Link to Genetic Counselling for Mitochondrial Disease Fact Sheet

Genetic Counselling for Mitochondrial Disease

Fact Sheet

Genetic counselling provides you and your family with information about the nature, inheritance, and implications of genetic disorders to help you make informed medical and personal decisions.

Link to Making Health and Medical Decisions Fact Sheet

Making Health and Medical Decisions

Fact Sheet

This fact sheet discusses advocacy services for health, disability and other services. It provides information about advance care planning and appointing a Power of Attorney.

Link to Genetic Testing for Mitochondrial Disease Fact Sheet

Genetic Testing for Mitochondrial Disease

Fact Sheet

This fact sheet explains the purpose of genetic testing for mito. It details what is tested, the potential costings and the meaning of the test results.

Load More