A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
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Link to Mitochondria from Basic Biology to Mechanism of Mitochondria Video

Mitochondria from Basic Biology to Mechanism of Mitochondria

Video

At a 2020 Mito Information Day, Dr Diana Stojanovski breaks down the biology of mito to explain what happens when someone is diagnosed with the illness.

Link to Palliative Care for Mito Kids Fact Sheet

Palliative Care for Mito Kids

Fact Sheet

This fact sheet helps you navigate the considerations of palliative care for your child and how to access the service.

Link to Mindfulness to Manage Your Health and Life Changes Video

Mindfulness to Manage Your Health and Life Changes

Video
Carolyn Uhlmann (Psychologist), provides great tips to manage the health and wellbeing changes that come with mito through practical mindfulness techniques.
Link to The NDIS Journey Video

The NDIS Journey

Video

Preeti Raghwani (mito community member and NDIS Support Coordinator) provides an introduction to navigating the National Disability Insurance Scheme (NDIS).

Link to Reproductive Options Fact Sheet

Reproductive Options

Fact Sheet

Preconception genetic counselling is recommended to couples who are planning to start a family. This fact sheet walks you through the process and available options.

Link to Preparing for Specialist Medical Appointments Fact Sheet

Preparing for Specialist Medical Appointments

Fact Sheet

This fact sheet provides helps and tips to gain the most benefit from your appointments. It is important to come prepared.

Link to Sample Letter to Your Child's Teacher Webpage

Sample Letter to Your Child's Teacher

Webpage

This template letter removes the stress of knowing how to communicate your child’s condition with their school. Use it to help your child receive the support they need at school.

Link to Considerations for Mito Patients Undergoing Surgery Fact Sheet

Considerations for Mito Patients Undergoing Surgery

Fact Sheet

This fact sheet explores what you need to consider if you are about to undergo surgery. Anaesthetic can cause complications so it’s best to consult a mitochondrial disease specialist.

Link to The Psychological Impacts of Mito Fact Sheet

The Psychological Impacts of Mito

Fact Sheet

A diagnosis of mito for you or a loved one can be very stressful and may leave you experiencing a rollercoaster of emotions. This fact sheets provides assistance to navigate these emotions.

Link to Mitochondrial disease update: testing and treating Video

Mitochondrial disease update: testing and treating

Video

In this video, Dr Matthew Lynch (Senior Neurology Fellow) provides an update on the developments in mito treatment and testing.