A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
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Link to Making Health and Medical Decisions Fact Sheet

Making Health and Medical Decisions

Fact Sheet

This fact sheet discusses advocacy services for health, disability and other services. It provides information about advance care planning and appointing a Power of Attorney.

Link to Genetic Testing for Mitochondrial Disease Fact Sheet

Genetic Testing for Mitochondrial Disease

Fact Sheet

This fact sheet explains the purpose of genetic testing for mito. It details what is tested, the potential costings and the meaning of the test results.

Link to Supporting Your Child at School Fact Sheet

Supporting Your Child at School

Fact Sheet

This fact sheet provides tips to support your child’s school life. Everything from nutrition to communicating with your child’s school is included here.

Link to Mito 4 Kids: A School Education Program About Mito Webpage

Mito 4 Kids: A School Education Program About Mito

Webpage

Mito 4 Kids is a school education program for children in years K-6. The program is designed to help school aged children, their parents and teachers better understand the needs of children who are affected by mito.

Link to How Might Supplements Fit into the Overall Treatment of Mito Video

How Might Supplements Fit into the Overall Treatment of Mito

Video

Dr Christina Liang explores different supplement options for people living with mito and how they may fit into treatment plans.

Link to Genetics and Mito Fact Sheet Page

Genetics and Mito

Fact Sheet Page

All your physical features are controlled by your genes, which you inherited from your parents. Genetic changes can lead to diseases such as mitochondrial disease.

Link to Fatigue in Mitochondrial Disease Video

Fatigue in Mitochondrial Disease

Video

Dr Christine Wools explores the different elements of fatigue, looking at how it is measured, different contributors and the treatments available.

Link to Mito Foundation Patient Information Flyer Fact Sheet

Mito Foundation Patient Information Flyer

Fact Sheet

This flyer provides a snapshot of key points concerning mito. This format is easy to print and share with health professionals who are unfamiliar with mito.

Link to Understanding Your Diagnosis Fact Sheet

Understanding Your Diagnosis

Fact Sheet

Due to the varied nature of mito, diagnosing mito can be difficult. This fact sheet helps to demystify this by providing an explanation of the different types of diagnosis.

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

It’s important to eat well when you have mito to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.