A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
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Link to Managing mito at school Fact Sheet Page

Managing mito at school

Fact Sheet Page

This resource provides tools to best help your child manage symptoms of mitochondrial disease (mito) at school.

Link to Advocating for your child at school  Fact Sheet Page

Advocating for your child at school

Fact Sheet Page

A resource for children already enrolled in school. It provides advice and tips on how to navigate some of the challenges kids with mito can face at school.

Link to Considerations for starting school Fact Sheet Page

Considerations for starting school

Fact Sheet Page

This resource provides information around the application and enrolment process into schools for children with mitochondrial disease (mito).

Link to Pathways Telehealth Nurse Program Introduction Video

Pathways Telehealth Nurse Program Introduction

Video

Michele Hemmings (Pathways Telehealth Nurse) introduces the Pathways Telehealth Nurse Program and shares why members of the mito community can benefit from accessing this service. To learn more, please call our Helpline on 1300 977 180 or email helpline@mito.org.au

Link to Genetic Counselling for Mitochondrial Disease Fact Sheet

Genetic Counselling for Mitochondrial Disease

Fact Sheet

Genetic counselling provides you and your family with information about the nature, inheritance, and implications of genetic disorders to help you make informed medical and personal decisions.

Link to Making Health and Medical Decisions Fact Sheet

Making Health and Medical Decisions

Fact Sheet

This fact sheet discusses advocacy services for health, disability and other services. It provides information about advance care planning and appointing a Power of Attorney.

Link to Genetic Testing for Mitochondrial Disease Fact Sheet

Genetic Testing for Mitochondrial Disease

Fact Sheet

This fact sheet explains the purpose of genetic testing for mito. It details what is tested, the potential costings and the meaning of the test results.

Link to Supporting Your Child at School Fact Sheet

Supporting Your Child at School

Fact Sheet

This fact sheet provides tips to support your child’s school life. Everything from nutrition to communicating with your child’s school is included here.

Link to Mito 4 Kids: A School Education Program About Mito Webpage

Mito 4 Kids: A School Education Program About Mito

Webpage

Mito 4 Kids is a school education program for children in years K-6. The program is designed to help school aged children, their parents and teachers better understand the needs of children who are affected by mito.

Link to How might supplements fit into the overall treatment of mito Video

How might supplements fit into the overall treatment of mito

Video

Dr Christina Liang explores different supplement options for people living with mito and how they may fit into treatment plans.