A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.

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Link to Supporting Your Child at School Fact Sheet

Supporting Your Child at School

Fact Sheet

This fact sheet provides tips to support your child’s school life. Everything from nutrition to communicating with your child’s school is included here.

Link to Mito 4 Kids: A School Education Program About Mito Webpage

Mito 4 Kids: A School Education Program About Mito

Webpage

Mito 4 Kids is a school education program for children in years K-6. The program is designed to help school aged children, their parents and teachers better understand the needs of children who are affected by mito.

Link to How might supplements fit into the overall treatment of mito Video

How might supplements fit into the overall treatment of mito

Video

Dr Christina Liang explores different supplement options for people living with mito and how they may fit into treatment plans.

Link to Genetics and Mito Fact Sheet Page

Genetics and Mito

Fact Sheet Page

All your physical features are controlled by your genes, which you inherited from your parents. Genetic changes can lead to diseases such as mitochondrial disease.

Link to Novel Therapies in Mitochondrial Disease Video

Novel Therapies in Mitochondrial Disease

Video

At a Mito Information Day, Dr Michelle Lipke spoke about novel therapies in the treatment of mito.

Link to Fatigue in Mitochondrial Disease Video

Fatigue in Mitochondrial Disease

Video

Dr Christine Wools explores the different elements of fatigue, looking at how it is measured, different contributors and the treatments available.

Link to Mito Foundation Patient Information Flyer Fact Sheet

Mito Foundation Patient Information Flyer

Fact Sheet

This flyer provides a snapshot of key points concerning mito. This format is easy to print and share with health professionals who are unfamiliar with mito.

Link to Understanding Your Diagnosis Fact Sheet

Understanding Your Diagnosis

Fact Sheet

Due to the varied nature of mito, diagnosing mito can be difficult. This fact sheet helps to demystify this by providing an explanation of the different types of diagnosis.

Link to Nutrition and Mito Fact Sheet Page

Nutrition and Mito

Fact Sheet Page

It’s important to eat well when you have mito to keep your body functioning at its best. Find out how to get plenty of nutrition from a healthy diet.

Fatigue and Mito

Fact Sheet Page

Fatigue is a symptom that varies from person to person and can’t easily be seen from the outside. It’s a common symptom in people diagnosed with mitochondrial disease (mito), and can contribute to feelings of loneliness and frustration. To find out what might be contributing to fatigue, doctors can do blood tests, check for sleep problems, heart and lung issues and refer you to other specialists. When managing fatigue, it’s important to reduce stress, drink enough water, avoid too much caffeine and alcohol, do relaxing activities, and talk to others about fatigue.

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