A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.

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Link to Transition – moving to adult health care Video

Transition – moving to adult health care

Video

Rachael Havrlant (Transition Care Network) spoke about the transition from paediatric care to adult care. She covered the basics and touched on the surprises people may face as they move to adult care. She also covered the difficulties children can face during the transition phase and how their families/carers can support them to have a better experience.

Link to Pathways to diagnostic testing for mito in children Video

Pathways to diagnostic testing for mito in children

Video

Dr Balasubramaniam spoke at a Mito Information Day on the pathways to genetic tests for children.

She delved into the barriers that families often face when considering genetic testing and gave valuable insights into what families should be aware of before making the decision to pursue genetic testing.

Link to Mito Connect Call - Peer Support Network Video

Mito Connect Call - Peer Support Network

Video

This Mito Connect Call introduces the Mito Foundation Peer Support Network. The network offers one-on-one support for mito community members. We know that sometimes the best support comes from someone who has similar experiences to you. Watch this recording to learn more about the Peer Support Network, including how to access it.

Link to How your feedback is improving NDIS support Video

How your feedback is improving NDIS support

Video

In this Mito Connect Call, Ruth Yuthok (Mito Foundation’s NDIS Navigator) introduced new web content full of valuable resources and case studies that reflect the positive impact of assistance on individual NDIS plan outcomes.

Link to Mitochondrial Genetics Video

Mitochondrial Genetics

Video

Michelle Cao explains the importance of genetic testing, the difference between direct-to-customer genetics tests and why your medical team may not accept their results, along with introducing the process of getting a genetic test in Tasmania.

Link to Gastrointestinal Manifestations of Mito Video

Gastrointestinal Manifestations of Mito

Video

Dr Christine Wools is a Melbourne-based Neurologist who works closely with the mito community. She explores the topic of mito and the gastrointestinal system – the clinical features and management of these.

Link to Your Hearing Video

Your Hearing

Video

Katie Tharle introduces Hearing Australia and provides an overview of what they do around the country. She also talks about hearing aids, the different kinds and options, the pros and cons of these options, and the services Hearing Australia offers.

Link to Understanding epilepsy and seizures in mito Video

Understanding epilepsy and seizures in mito

Video

Prof Mary Kay Koenig discusses the most common seizures found in children and adults with mito, reviews how and why seizures occur, and the treatment and precaution recommendations.

Link to Understanding genetics and getting a genetic diagnosis Video

Understanding genetics and getting a genetic diagnosis

Video

Emma Celis and Prof David Thorburn break down the complexity of genetics to help you know the different types of variants that apply to mito. They then talk through a range of genetic testing options available and explore how and where to access genetic testing.

Link to Understanding and managing pain Video

Understanding and managing pain

Video

Prof Toby Newton-John is a Professor of Clinical Psychology and a practising Clinical Psychologist. In this video, Prof Newton-John discusses why we feel pain, the impacts of chronic pain, and the importance of pain management in maintaining quality of life.

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