A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
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Link to Important information about medicines Webpage

Important information about medicines

Webpage

Mitochondrial disease (mito) is complex. Two people with mito can have very different symptoms and considerations for medication. Talk to your health professional before making any changes to your medication. This will help inform you about any risks associated with mito.

Link to Travelling with equipment Fact Sheet Page

Travelling with equipment

Fact Sheet Page

Considerations for travelling when you require to take equipment.

Link to Travel insurance Fact Sheet Page

Travel insurance

Fact Sheet Page

Information about travel insurance when impacted by mitochondrial disease (mito).

Link to Travelling with medication Fact Sheet Page

Travelling with medication

Fact Sheet Page

Information and tips to travel safely with your medicines and medical devices.

Link to Travelling with mito  Fact Sheet Page

Travelling with mito

Fact Sheet Page

Travelling can be thrilling but also challenging for those with mitochondrial disease(mito). This information aims to assist in the planning processt o make the journey more enjoyable.

Fatigue and Mito

Fact Sheet Page

Fatigue is a symptom that varies from person to person and can’t easily be seen from the outside. It’s a common symptom in people diagnosed with mitochondrial disease (mito), and can contribute to feelings of loneliness and frustration. To find out what might be contributing to fatigue, doctors can do blood tests, check for sleep problems, heart and lung issues and refer you to other specialists. When managing fatigue, it’s important to reduce stress, drink enough water, avoid too much caffeine and alcohol, do relaxing activities, and talk to others about fatigue.

Link to Transition – moving to adult health care Video

Transition – moving to adult health care

Video

Rachael Havrlant (Transition Care Network) spoke about the transition from paediatric care to adult care. She covered the basics and touched on the surprises people may face as they move to adult care. She also covered the difficulties children can face during the transition phase and how their families/carers can support them to have a better experience.

Link to Pathways to diagnostic testing for mito in children  Video

Pathways to diagnostic testing for mito in children

Video

Dr Balasubramaniam spoke at a Mito Information Day on the pathways to genetic tests for children.

She delved into the barriers that families often face when considering genetic testing and gave valuable insights into what families should be aware of before making the decision to pursue genetic testing.

Link to Mito Connect Call - Peer Support Network Video

Mito Connect Call - Peer Support Network

Video

This Mito Connect Call introduces the Mito Foundation Peer Support Network. The network offers one-on-one support for mito community members. We know that sometimes the best support comes from someone who has similar experiences to you. Watch this recording to learn more about the Peer Support Network, including how to access it.

Link to How your feedback is improving NDIS support Video

How your feedback is improving NDIS support

Video

In this Mito Connect Call, Ruth Yuthok (Mito Foundation’s NDIS Navigator) introduced new web content full of valuable resources and case studies that reflect the positive impact of assistance on individual NDIS plan outcomes.