A central hub of resources has been collated to help you understand and manage mito. Here you will find practical information on a wide range of topics via fact sheets, videos, expert presentations and third party resources. Search on a specific topic or view the resources of particular relevance for newly diagnosed, medical professionals, adults or parents and children.
  • Type of Resource

  • Category

Link to Using Activity to Enable, Empower & Optimise Your Health Video

Using Activity to Enable, Empower & Optimise Your Health

Video

At a Tasmania Mito Foundation, Phil Ladlow (Neurological Physiotherapist) spoke about the role and benefits of exercise and positive lifestyle activities in optimising wellbeing in individuals with mito.

Link to Advocating For Your Children At School Video

Advocating For Your Children At School

Video

During a Mito Connect Call, Michele Hemmings (Patient Pathways Nurse) shared advice to advocate for children at school to ensure they are getting the best support.

Link to Navigating the NDIS during COVID-19 Video

Navigating the NDIS during COVID-19

Video

During this timely Mito Connect Call, Tammy Whait (Inclusion Support Solutions) explores how to access the National Disability Insurance Scheme (NDIS) benefits if your situation has changed.

Link to Students Living with a Genetic Condition: A Guide for Parent Fact Sheet

Students Living with a Genetic Condition: A Guide for Parent

Fact Sheet

This how-to guide helps communicate your child’s support needs before they begin school.

Link to A Little Book About Mito Fact Sheet

A Little Book About Mito

Fact Sheet

A brightly illustrated book to help you guide your child through their mito diagnosis.

Link to First Steps With Mito Guide Fact Sheet

First Steps With Mito Guide

Fact Sheet

The diagnostic journey for those affected by mito often takes years and can be extremely distressing and isolating. This fact sheet aims to help you navigate information about mito and the health system.

Link to MindSpot Online Pain Course Webpage

MindSpot Online Pain Course

Webpage

This course is a free internet-delivered pain management program for adults aged 18 years and over.

Link to Exercise and Mitochondrial Disease Fact Sheet Page

Exercise and Mitochondrial Disease

Fact Sheet Page

Regular exercise can help you in lots of ways if you have mito. Read some easy tips for safely getting started with an exercise program, setting goals.