Fatigue in Mitochondrial Disease

Dr Christine Wools explores the different elements of fatigue, looking at how it is measured, different contributors and the treatments available.

 

More Videos

Link to The role of General Paediatricians Video

The role of General Paediatricians

View Video

At a Mito Information Day, Dr Quin spoke about the value of involving a General Paediatrician in your child’s care.

Link to Leber hereditary optic neuropathy (LHON) in Australia Video

Leber hereditary optic neuropathy (LHON) in Australia

View Video

At a Mito Information Day, Dr Lopez Sanchez spoke about her research into Leber hereditary optic neuropathy (LHON), including the promising findings of her latest project.

Link to Australian Genomics' Mitochondrial Disease Flagship Update Video

Australian Genomics' Mitochondrial Disease Flagship Update

View Video

At a Mito Information Day, Professor Christodoulou AM shared an update on the Australian Genomics Mitochondrial Flagship research project.

Link to Mitochondrial Donation Q&A Webinar Video

Mitochondrial Donation Q&A Webinar

View Video

A panel of mito experts answered questions from the community about the next steps for Maeve’s Law after it was passed in March 2022.

Link to Advance Care Planning Video

Advance Care Planning

View Video

During a Mito Connect Call, Carolyn Vaughan presented on the value of advance care planning. This included the importance of deciding who will make health decisions on your behalf and how to engage in the conversation about end of life.

Link to Grief, Loss and Bereavement Video

Grief, Loss and Bereavement

View Video

During a Mito Connect Call, Wendy Liu (Specialist Grief Counsellor, Couple & Family Therapist, and Accredited Mental Health Social Worker), covered a range of topics to help understand and manage grief and loss.

Link to Driving Change for the Mito Community Video

Driving Change for the Mito Community

View Video

At a Digital Mito Information Day, Clare Stuart (Mito Foundation Policy & Advocacy Manager) spoke about Mito Foundation’s policy and advocacy work, including mitochondrial donation, improving access to genetic technologies and working to improve supports available through NDIS and other government programs.

Link to Managing Mito, clinical practice and mito experiences Video

Managing Mito, clinical practice and mito experiences

View Video

At a Digital Mito Information Day, Janet Long and Stephanie Best presented work done around the management of mito from the perspective of clinicians and people with mito. This included work on how apps, telehealth and other virtual resources can assist with problems unique to living with a rare disorder 

 

Link to Maeve's Law: The path to now and what lies ahead? Video

Maeve's Law: The path to now and what lies ahead?

View Video

At a Digitial Mito Information Day, Prof David Thorburn summarised the progress on mitochondrial donation and presented other reproductive options that community members can access.

 

Link to Genetic Counselling and Mito Video

Genetic Counselling and Mito

View Video

Mito Registry Co-ordinator and recent graduate Genetic Counsellor, Emma Celis, explains the role of genetic counselling for both those with a confirmed mito diagnosis and those with suspected mito who are still searching for answers.